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Just a bunch of unrelated long covid research news from Hungary that I've collected in the past couple of weeks. 1. The University of Debrecen receives roughly a billion forints from the Ministry of Innovation and Technology National Research Development and Innovation Fund to study the full...

Thanks for the explanation. That is also what I expected based on what I've read on this forum so far.

So the story is: my disease started with EBV, I was tested while ill and it showed I had a fresh infection. (Based on the IgM. Here is an explanation from CDC about what the different values mean when testing for EBV.) That was more than 5 five years ago now and currently I'm slowly getting...

Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine, 2015, Magnus et al This was about the 2009 H1N1 pandemic in Norway. This is the thread we have on it.

Well, at least the presentation focuses on the change, so maybe I'm just too harsh with how psychiatry might deal with this. I don't think this will be available online and I would love to see it. Do you think (not necessarily you, Trish, but people on the forum in general) that it would be seen...

It sounds like this will be a similar narrative to what Professor Janszky presented last year at the long covid symposium of the Academy: The science is sound, no probs, it is just that these extremely powerful patients with their incredibly strong political ties keep influencing NICE, Cochrane...

The University of Debrecen (one of the biggest unis in the country, it also set up the first long covid clinic) is organizing the 17th Behavioural Science Days, where behavioural scientists from all four medical universities will participate. The main topic will be covid and the impact of the...

The BMJ: Health secretary pledges more ME/CFS research as he reveals that relative has condition by Ingrid Torjesen Patients with myalgic encephalomyelitis (ME) can expect to see more research and support for the condition, which “has been neglected for far too long,” England’s health and...

I've remembered another one: Chronic Fatigue and Postexertional Malaise in People Living with Long COVID: An Observational Study, 2022, Twomey et al

There was also this one:Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease, 2021, Mancini et al It used Fukuda though. Then there was this one relatively early on, where the vast majority experienced PEM. It was an online survey though...

I'm not diabetic but I have the same experience with eating. Afterwards I can feel extremely sluggish with very intense brain fog, drowsiness etc and I often have to even lie down and sleep. It may sound like what healthy people sometimes feel after a big meal but it is actually much worse and...

I can see it on Goodreads, good job. :thumbup:

Full title: Comparing Operationalized Approaches for Substantial Reduction of Functioning in Chronic Fatigue Syndrome and Myalgic Encephalomyelitis Abstract A core criterion for Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME) is a substantial reduction in functioning from...

Patients (with any kind of terrible disease but especially of unknown etiology) can be desperate for an answer, hence we are in this CCI thread to begin with. :emoji_shrug:

From time to time people show up in my group asking if they sound like someone with ME/CFS based on their symptoms. And there are a few people who always say "these are Lyme symptoms, don't trust the tests and go to this one doctor, she is the only person in the whole country who can diagnose...

I talked about a potentially sympathetic neurologist in this earlier, longer post: I messaged her a couple of days ago and asked if she might potentially accept ME/CFS patients in the future (for diagnosis, medical advice according to NICE etc) and she replied (Google Translate): Dear Agnes...

An Adrienne Dellwo article again. She keeps writing these as if they were fact.

If the first author's, Jan Choutka's name sounds unfamiliar: He is (I think) the chairman of the Czech ME/CFS Association. Recently I shared his posts in the Visegrád countries thread, where he explained that they wanted the Czech Republic to adapt the NICE guidelines and the process to develop...

This was originally posted by a member of the Austrian Green party and reposted by the Austrian ME/CFS organization CFS Hilfe. Those in the picture are members of the Green party, all wearing ME/CFS T-shirts (I think last year we saw the Austrian Minister of Health wear one.) Facebook...

I like how they don't even use the initials anymore for those acronyms and just pick any letter that comes next from the middle of the words. Now the possibilities are endless for such a cardinal feature of these studies.