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Jonathan Edwards messaged the journal Orvosi Hetilap about the misrepresentation of the NICE guideline in the Hungarian consensus recommendation for ME/CFS. Today they have published a response from the authors: https://akjournals.com/view/journals/650/166/27/article-p1079.xml The response is...

Posted on behalf of @Yan

by Hilario Blasco-Fontecilla Abstract Speer allergic tension-fatigue syndrome (SATFS) is a classic allergy syndrome characterized by allergy-like symptoms, muscle tension, headaches, chronic fatigue, and other particular behaviors that were initially described in the fifties. The particular...

Abstract The COVID-19 pandemic, caused by SARS-CoV-2, has resulted in widespread morbidity and mortality, with a significant portion of the affected population experiencing long-term health complications. This review explores the mechanisms of mitochondrial dysfunction in both the acute and...

I'd like to draw your attention to the last paragraph of the article: "The Ministry of Interior, the Medical Professional College, the lead author of the guideline Gábor Simonyi, and Orvosi Hetilap were all contacted about the matter. The latter responded that the next issue of the journal will...

A journalist contacted me after the horrible Hungarian ME/CFS consensus recommendation and misrepresented NICE guideline. She published an article today in one of the largest news sites in Hungary, this is the main article on the page right now. However, she only asked me in a short phone...

Another article by Hollis in Psychology Today. This one is Part 1 of a series, which I find a bit odd, as the previous articles already seemed like a series. Maybe a series within a series? Harnessing Neuroplasticity for Chronic Fatigue Recovery How can we use our psychology to affect our...

Ugh. Someone very recently asked about this in my group ("has anyone here tried...?"). I've never heard about this as an ME/CFS "cure" and was wondering were this idea came from.

Highlights Mouse-adapted SARS-CoV-2 induces post-COVID neurobehavioral alterations in mice. Post-acute SARS-CoV-2 MA10 infection increases P2X7 receptor levels in mouse prefrontal cortex and hippocampus. P2X7 antagonist treatment partially reduces anxiety and depression-like behaviour in...

Andrew Kirvin-Quamme, Karen D. Kirke, Oscar Junge, Jonathan C. W. Edwards, Kevin J. Holmes Introduction In a recent, high-profile study of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS), Walitt et al. (2024) assessed the performance of patients and healthy...

New article by Jake Hollis in Psychology Today. Why is this guy getting so much space to post his musings there? ME/CFS, Long Covid, and Disconnection From the Self Could the ways you meet the world make you vulnerable to chronic fatigue? Key points Certain personality traits have been...

I'm posting those names here so they come up in search results on S4ME, just for future reference. Elizabeth Carlson Recovered from ME/CFS Kate Blake, Christine Cooper, Richard Forish, Sylvia Haasbroek, Jill Hermon, Jake Hollis, Peter Hope, Verena Hurst, Catherine Johns, Eleanor Kirby, Ebba...

Katrina Pears is actually a member here. I remember she posted a few things a while ago. However, I'm unable to tag her for some reason. I'm not sure if it is due to some technical difficulties or not. Anyway, here is her member profile in case someone else would like to tag her or maybe even...

Another article in the NL Times: Dutch doctors using questionable treatment on kids with chronic fatigue syndrome It's written in English: "Patient organizations PostCovidNL and LongCovidNederland told NOS that they can’t believe this treatment is still used on children with ME/CFS. Most Long...

Zheyi Wang, Zetai Bai & Yize Sun Abstract Background Accumulating evidence has hinted at a correlation between immune cells and post-viral fatigue syndrome (PVFS). However, it is still ambiguous whether these associations indicate a causal connection. Objective To elucidate the potential...

Yes, I've seen it, thanks. This is one of the studies the Academy funded. The idea behind some of these studies seems worth investigating, however, there are problems with sampling in almost all of these, as you have found in this case for example. Other Hungarian long covid studies recruit...

Several new papers have been posted on Qeios today but I haven't seen this one yet.

I have even seen a (probably now deleted) Reddit thread accusing her of taking donations and then not sharing with the public what she did to recover. That really rubbed me the wrong way, even though I understand how devastating living with this disease is.

Full title: Cognitive Slowing, Dysfunction in Verbal Working Memory, Divided Attention and Response Inhibition in Post COVID-19 Condition in Young Adults Johanna Takács, Darina Deák,Beáta Seregély and Akos Koller Abstract After COVID-19 infection, about 30% of people have clinically...

Study suggested by @Utsikt