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ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...

I don't really have a dry mouth but feeling incredibly thirsty for no reason is an early sign of PEM for me. And yes, it doesn't matter how much I drink, the thirst just stays, it is unquenchable for quite a while.

This one is from Slovakia, not Hungary this time. (Slovakia has a sizeable Hungarian minority for historical reasons and they have their own Hungarian-language news sites, so I can read about what's going on there.) So the thing is: apparently, they don't have any long covid clinics there yet...

"Israel will recognize fibromyalgia, a once widely dismissed illness that involves chronic muscle pain, as a disability. People with the condition will be recognized as disabled within a few weeks, and will be able to claim up to 40 percent of a full disability allowance, Welfare and Social...

Yes, thanks, I saw that nothing was highlighted when I tried to copy it and just assumed that it cannot be copied for whatever reason (which would make sense on certain websites but not really for a patient organization, so it seemed quite odd of course). I

I very much agree with this, I've had the same period-related experience (although for me it returned to almost normal when I got better after the first two really difficult years). The point is that I regarded this as one of the less dismissible symptoms, since this is really not something...

Maybe you can ask here?: aokumu@stanford.edu They say you have to mention fecal swab study in the subject line to participate but you can probably ask them some questions too.

ME Action doesn't let me copy the text, so here is the link with the details: https://www.meaction.net/2021/10/19/stanford-study-enrolling-now/ In short: It's Ron Davis's lab, they are looking for severely ill, mostly bed-bound people from the US. What is needed: fecal swab sent by mail +...

Earlier I wrote about the roughly 1 million euros the Hungarian National Academy of Sciences is planning to spend on high risk research in connection with "post-covid phenomena". They want to fund 6-12 studies in the next 2 years. I think the original deadline was October (with actual research...

I know I sound like a stalker but if anyone is interested: the original post about becoming a patron has been deleted both from the MEA website and Facebook. This is what you can read in the comment section of today's FB post: ME Association limited who can comment on this post. (I'm a follower...

ME Association Trustee’s Statement re: the appointment of Professor Findley as Patron of the charity "Following the appointment of Professor Findley as a new patron of the charity on 06 October, and while we have received a good number of messages supporting the decision from both charity...

Medical News Today: WHO issues clinical case definition of long COVID I believe the WHO should also create a case definition for stillnotgettingitis, a terrible chronic psychosocial disease so many unfortunate doctors suffer from. From the article: Dr. Al-Aly, the chief of Research and...

I think the proponents of craniocervical instability (as a reason for ME/CFS symptoms) say that infections can break down collagen (I think there is a study about this somewhere). That's another "connection". However, @Jonathan Edwards said earlier that there is no reason why that breakdown...

When I had that major knee surgery at the age of 20, I told the nurse about the pain I felt afterwards (literally just days afterwards). Her reply: you don't know what real pain is. So at least her logic seemed to be that it cannot hurt too much if you aren't old enough to have experienced...

'These people aren't crazy': How long COVID could help sufferers of other little understood syndromes From an Australian news source, focusing on Ross River virus and its long-term effects. Personal stories from two patients (one diagnosed with ME/CFS) and a virologist from Griffin University...

A medical mystery, the neurology of long COVID comes into focus An article about the theories surrounding long covid, with occupational medicine specialist Dr. Greg Vanichkachorn, medical director of the COVID-19 Rehabilitation Activity Program at Mayo Clinic. Excerpts: One emerging area of...

I think it is generally quite good, you should read it. :) Hattrick made some interesting claims though, for example that Virginia Woolf etc probably suffered from ME/CFS too and I'm not sure if this really is a serious hypothesis. Or at least this is new to me but it also seems to be part of...

Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings". Alice Hattrick was aged eight when their mother collapsed with mycoplasma pneumonia. The author – who prefers the gender-neutral pronoun “they” – found her on the kitchen floor at their home in...

The New Zealand Science Media centre asked some experts about the new case definition: Long Covid Gains Official Recognition – Expert Reaction More specifically: - Dr Anna Brooks, Cellular Immunologist and Senior Research Fellow, Maurice Wilkins Centre, University of Auckland, who alse mentions...

Really long interview with Éva Rákóczi, head of the infectology-rheumatology department of the long covid clinic at the University of Debrecen (this was the first long covid clinic in Hungary). This was published on ElitMed, in the Hungarian-language Lege Artis Medicinae journal. The...