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Is this one of those where scores out of 10 on a questionnaire are assumed to have a linear, mathematical reality across individuals and groups? So e.g. if a control says their fatigue went from 1 to 3 and a pwME says theirs went from 5 to 7, that's interpreted as showing "no difference" because...

Meanwhile the first letter makes several points which haven't dated at all: The only part that is out of date is his suggested definition of "Functional disorder: an illness for which the clinician has not found an explanation using his/her own frame of reference", since for some clinicians...

I really hope she doesn't end up in a long-lasting crash from trying to "challenge" herself to complete something that's beyond her current limits.

What they're actually asking is can you do these things "safely and without difficulty", or "reliably, repeatedly, safely and in a reasonable time" (the exact wording varies between forms) - those criteria apply for every question. If the process was designed more fairly, the form would repeat...

Plus the new crop (numbers unknown) of people who meet the criteria for an ME/CFS diagnosis but have 'Long Covid' or 'FND' on their records instead.

So bad it would be funny, if it wasn't serious.

About a year ago according to https://www.benefitsandwork.co.uk/news/beware-latest-pip-review-form The new one is much more restricted in the kinds of questions that are asked and what answers you can give, with less scope to accurately describe the impact of a disability like MECFS. So the...

Nice to see a question relating to a specific aim and a specific timescale, rather than the usual 'what plans does the government have to help...?' which get the vague reply of 'we are committed to helping,' from which nobody learns anything.

It will be interesting to see how many people will turn out to have always disagreed strongly with him, once he's no longer in a position to hear them saying so.

Cummings acknowledged in her earlier work that her subjects were drawn from the milder end of the Long Covid spectrum and that her findings don't cover the needs of more severely affected people. I can't see a similar acknowledgement here, although I might have missed it.

Some of the chapter is about difficulties that might result from stroke, intubation in hospital, etc. Most of the 'post Covid condition' section looks largely the same as author's previous paper...

From the UCL link: More definition creep around PEM...

The AI "summary" is longer than the original text and its version of the 'Aims of the Event' includes things which aren't in the original. I do appreciate the effort and intention in posting it but these AI things often just introduce confusion (and we get enough confusion already).

https://mas.to/@brianvastag/115390872484611125 i.e. a group of patients who might be more likely to recover/improve anyway?

Brian Vastag is posting live comments from a "Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid", an event sponsored by Renegade Research. It's a long thread, sorry I can't copy and paste everything relevant. Cases of recovery, also various caveats and...

Still can't find the quote I'm looking for but did spot this one with Walitt saying "effort preference" plays "an important role in other disorders such as MS and Parkinsons". How's that idea working out, I wonder...

One of the other authors on the paper was quoted saying the 'effort preference' stuff wasn't an important finding and the interesting bit was the immunological results. (Sorry, can't remember if it was Nath or one of the others, or if the quote was on this thread or one of the others. I think it...

LLM-generated text probably for an auto-generated "news aggregator".