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  1. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    Is he still on Twitter? Maybe someone could send him some tempting links to threads for paper discussions...
  2. E

    Insights from triggers and prodromal symptoms on how migraine attacks start: The threshold hypothesis, 2024, Sebastianelli et al

    I've never been able to identify any triggers for mine (they aren't frequent). Wish I knew!
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    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The more you look at this paper the weirder it gets.
  4. E

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe it's the kind of plastic they use to make scuba masks.
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    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I got the Loop Link for mine, so they're hanging around my neck when not in my ears, and it massively reduces the faff of constantly dropping/picking up/cleaning/losing them.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Claiming to have been threatened and 'silenced' might also have the effect of discouraging other researchers from going into the field and coming up with data which could make them look very silly (and dishonest).
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    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    And on the other hand there are people like Danny Altmann who has said on many occasions that they have studies ready to go but can't get any interest from funders - e.g.
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    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    And the brainwork of multitasking any combinations of physical & mental effort is another exertion in itself. Eating a meal while talking to someone isn't two kinds of exertion, it's three.
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    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    Before I got ill, car travel always used to make me sleepy - a pleasant sensation as long as I wasn't the driver. Now it makes me tired-but-wired - the opposite of sleepy. Also dizzy, wobbly, verbally incoherent and with the sensation of continuing to move for hours afterwards. (edited to add...
  10. E

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    That analogy doesn't strengthen his argument about the 'mind-body connection', it undermines it. But he hasn't noticed because he's too busy lucratively guilt-tripping people. Like a medium trawling for a receptive audience member. Something's coming through, I'm getting a name... does anyone...
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    Miranda Hart - British comedian

    Wonder if that's the same Clare Wilson. https://www.newscientist.com/article/mg20126997-000-mind-over-body/
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    Covid-19 vaccines and vaccinations

    The NHS website said I wasn't eligible for a free Covid vaccination, so I booked a private one for today. But the pharmacy's system said I was on the free list, and so was my husband as a carer. I'm not going to try to understand it but am happy with the outcome!
  13. E

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Somebody's journalism course didn't cover Betteridge's Law of Headlines: "If the headline is a question, the answer is no."
  14. E

    Mental health patients could get job coach visits

    If this report is accurate, it seems the claims for the 'dramatic success' of the pilot project rest on evaluating only the small minority of people who found long-term employment and ignoring everyone else. https://www.thecanary.co/uk/analysis/2024/10/17/dwp-mental-health-job-advisors-hospitals/
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    Miranda Hart - British comedian

    :rofl:
  16. E

    Miranda Hart - British comedian

    [Unprintable] off.
  17. E

    Miranda Hart - British comedian

    How easily reporting creates bias - "backlash to health information" as opposed to, say, "criticism of medical claims".
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    UK: Daily Mail: Half of women fear the NHS treats their health as a 'second-class issue'

    It might help if there could be some kind of pathway that would allow learning from misdiagnoses. As it is, you go and see a GP (or whoever) with your concern, they say 'oh no, I shouldn't think it's that, you just need to stop worrying', and you then never see the same person again. So when the...
  19. E

    The Concept of ME/CFS

    "we need people who have not been trained in disciplines where uncritical acceptance of theory-based practice is the norm" Is the problem that they're being trained to uncritically accept theory-based practice, as such, or is it that they're being trained by people who believe the practice...
  20. E

    MET Levels in Occupational Therapy: Enhancing Treatment Efficacy and Patient Outcomes

    Thanks for this - really useful to see some practical real-world examples.
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