Search results

Really good letter @Robert 1973 Andrew Millar: "Chris Ponting says that medical misogyny has held back research in myalgic encephalomyelitis (News, Aug 8), but appropriate scepticism of scantily evidenced claims may also have contributed." Funny how appropriate scepticism of scantily...

Definitely, if it's a well-defined cohort of ME-type Long Covid rather than the 'anything-that-affects-you-after-Covid-that-doesn't-have-another-explanation' definition of LC.

The LLM isn't actually detecting any real hype, it's just generating some text about 'hype' because similar text strings are often found in the sources that it's been trained to mimic.

My guess is they prepared a media response strategy based on the assumption that genetic linkages to depression and anxiety would be found. Without that, they have to fall back on pretending the whole thing is insignificant.

The dogs bark, but the caravan moves on.

Tessa Munt MP on Channel 4 news making a strong point about the inadequacy of the Delivery Plan & that we need real action now from Wes Streeting and Ashley Dalton.

Thanks for this - I've just got round to signing up.

I've just stopped using it* too, for pretty much the same reasons (and I disliked how it kept pushing a certain interpretation of HRV and 'coherent breathing' that wasn't supported by its own results). I did find it useful initially for symptom tracking and showing me how much exertion was...

Ironically, the level of general ignorance and hostility towards pwME and pwLC in the NHS in general will make the specialist services look better in contrast. The bare minimum feels like generosity when elsewhere you've only been met with a kick and a spit.

Hilda Bastian has posted this: https://mastodon.online/@hildabast/114914005296356347

Hear, hear.

In the Delivery Plan under the header 'Stimulating further research into ME/CFS' Do we know anything about when this is happening & who's involved?

Not even the worst thing about that, but "MS/CFS"?? FFS.

It would be interesting to know how they were selected.

I've just found out that a friend of a friend is part of this group at Cambridge, so I'll ask the friend in the middle to forward the link to JE's Qeios paper.

Edited to add: maybe it's the other way round from their hypothesis. Maybe athletes with Long Covid are more likely to be able to still compete if they do a throwing or jumping discipline involving brief bursts of effort with rests in between, while those in endurance disciplines are less likely...

Covid isn't just over, it never existed.

Good to see they acknowledge the limitation that their cohort didn't include any severely affected patients.

To a lay person, this all sounds a bit circular?