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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    It's hard to take a horse to water when people keep putting the cart in front of it.
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    Post-COVID-Syndrome Patients Might Overestimate Own Cognitive Impairment, 2025, Wöhrstein et al.

    Interesting that some of their subjects had objective cognitive deficits in some domains but didn't subjectively report experiencing it. So a better title might be Post-COVID-Syndrome Patients Might Overestimate or Underestimate Own Cognitive Impairment. Or perhaps Post-COVID-Syndrome Patients...
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    USA: News from the Bateman Horne Center

    Their 'Good Day/Bad Day Questionnaire' is quite interesting. Don't think I've seen a discussion of it here? (Keywords are too short to search the forums.) It's obviously a blunt instrument, but giving answers for both ends of a spectrum of functioning might be more helpful than the majority of...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    "After an hour-long stand-off (pictured), the activists eventually persuaded Department for Work and Pensions (DWP) civil servants to allow one of them, Rick Burgess, to address the disabled people taking part in the consultation. He asked those present to vote on whether they wanted to give...
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    Cognitive impairment and associated neurobehavioral dysfunction in post-COVID syndrome, 2025, Schmidt et al

    Good point. The whole thing is probably pretty tenuous anyway given the infant nature of the art of trying to interpret psychological states from fMRI, and perhaps especially so in the context of other people's findings on cerebral blood flow.
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    Cognitive impairment and associated neurobehavioral dysfunction in post-COVID syndrome, 2025, Schmidt et al

    So they expected to find PCS patients were less reward-motivated (because of our "anhedonia" causing us to imagine that we're fatigued, innit) but they actually found the opposite?
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    [UK] A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform

    It's likely that not everyone who currently has an 'ME/CFS' diagnosis will actually have whatever problem the new biological explanation points to. Some will be left as a 'mysterious chronic fatigue' afterthought and they'll be great prey for the psychologisers - not only are all their tests...
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    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    So only two out of the 44 participants had a diagnosis of FND, but they all had FCD which is a subtype of FND? (according to the authors)
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    Trial Report Long COVID Brain Fog Treatment: Findings from a Pilot Randomized Controlled Trial of Constraint-Induced Cognitive Therapy, 2024, Uswatte et al

    Thread on the preprint here. https://www.s4me.info/threads/long-covid-brain-fog-treatment-findings-from-a-pilot-randomized-controlled-trial-of-constraint-induced-cognitive-therapy-2024-uswatte-et-al.39224/ My comment there was: (edit to add: sorry for the unnecessary duplicate post, should...
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    UK House of Lords/ House of Commons - relevant people and questions

    At least they've stopped using that line about how 'at worst', ME/CFS can make people 'feel' they aren't getting proper care. Perhaps someone's explained how insulting it was.
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    [Book] Long COVID Fatigue, 2025, Rudroff

    I'd bet money that the phrase "As a large language model" appears somewhere in there.
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    Autism and ME/CFS

    That was my reaction too, as an autistic person and the parent of an autistic child.
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    CENSSAS: Exploring Associations Between CENtral Sensitivity Syndromes and the Autism Spectrum

    (Incidentally I first read the study title as "Inventing Associations Between Central Sensitivity Syndromes and the Autism Spectrum", which sounds about right.)
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    CENSSAS: Exploring Associations Between CENtral Sensitivity Syndromes and the Autism Spectrum

    Something that is frequently talked about by autistic people is 'sensory seeking', ie being undersensitive to stimuli (compared to other people), hence some physical repetitive behaviours or 'stimming' (repetitive movements or fiddling) to provide a consistency of sensory feedback. I've no idea...
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