Search results

Couple of things from a quick skim of the PDF: That suggests their participants were on the milder end of LC, because those with more severe symptoms would have been more likely to already be on a GP or specialist care pathway and so ineligible for the study?

In the rubber hand illusion, as in other illusions, the illusory sensation is almost immediately extinguished as the brain corrects its momentary error. The initial conditioning doesn't cause the participant to go on believing that the rubber hand is their own. You could just as well argue that...

Higher doses have some nasty side effects, which would be problematic both in terms of wanting to avoid harming trial participants and also possibly creating confusion in the data.

GPs and other HCPs often seem to have enough trouble understanding the facts of what life is like for pwLC and ME, without becoming confused with yet another 'it's a bit like this except not really' condition.

A member suggested that people think the person in pain is performing or amplifying the discomfort by fixating on it and conversely, if you can grit your teeth and hide the fact you're in pain, that obviously means the pain isn't that bad. There's no "correct" way to give an external idea of...

Bookmarking this answer for the next time I try and talk to my GP about why my ferritin is low but other rbc results are OK!

I hadn't heard of Patricia Murray before. https://www.liverpool.ac.uk/people/patricia-murray Interested to see that she began her career as a nurse. Perhaps this helped her to see medical claims in terms of their impact on patients rather than on the researchers' careers.

Saw this in a Mastodon thread today about the World Conference on Research Integrity. https://mastodon.online/@tomstafford/114301415246307147

Researchers missed a trick not including healthy controls. If caffeine also improves the walk distance, perceived fatigue and so on of control participants, then they've found a treatment that can support healthy people being rehabilitated from, um, healthiness.

Did they check whether all the confirmed ME/CFS diagnosed patients passed this test?

OK! Yes, probably safest.

I'll try and do this later.

And followed up the subjects for a year, so we could see how many *actually* recovered enough to resume their old lives, and how many ran on fumes for a few months and then crashed.

It's a shame things sometimes get sensationalised to make an eye-catching title. Plenty of people don't find tracking a gift or a curse, just something that helps a bit (or doesn't).

Long-term effects of SARS-CoV-2 infection on blood vessels and blood pressure – LOCHINVAR Where did they get the H?

I can say the first three or four syllables of 'Deteriorative' but my chances of getting anyone else to understand the whole word would be slim! What's a word meaning the same sort of thing but easier to pronounce?

Thank you for keeping up with all these.

Chalder Fatigue Questionnaire. [sound of someone scrunching up paper and dropping it in the bin]

I've tried to see how this compares with the asymmetrical results found in 'Glymphatic system dysfunction in recovered patients with mild COVID-19: A DTI-ALPS study' https://www.cell.com/iscience/fulltext/S2589-0042(23)02724-4 but it's too many words for me Forum thread here...