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  1. Sean

    News from The Netherlands

    Arse covering. Follow the 'protocol' and you will be safe from having to face the consequences of doing so.
  2. Sean

    Guardian piece on"Lyme"

    This is the line the PACE crowd push about any bad outcomes from GET. They claim it is all just inappropriate implementation by inadequately trained therapists, not anything wrong with the therapy itself. I wouldn't even describe it as a model. More like a lurid fantasy they cannot let go of.
  3. Sean

    Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour

    Whatever hold this guy has over the political establishment must be powerful indeed to be allowed to endlessly fail upwards. What next? Sainthood?
  4. Sean

    Specialised care for severely affected ME/CFS patients, 2025, Saugstad

    Dec 2023, according to who.is
  5. Sean

    The function of ‘functional’: a mixed methods investigation, 2012, Kanaan et al.

    The gold standard for perverse incentives. Par excellence, one might even say. It's from The Big Short, about the corruption in the US housing market and its eventual collapse in 2008, and how little accountability there was for it. There are two other movies about that human-made disaster...
  6. Sean

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    The next meeting of the ME/CFS GDC is planned for late October 2025 and will focus on gaining a shared understanding of the GRADE (Grading of Recommendations Assessment, Development and Evaluation) methods approach. Uh-oh. :grumpy:
  7. Sean

    "COVID Isn’t a Cold. It’s Cigarettes All Over Again" by David Ramsey

    :emoji_clap::emoji_clap::emoji_clap: It is impossible to overstate how much long-term damage is being done.
  8. Sean

    Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective [...], 2025, Zhang+

    Without decisive action, the long-term societal cost of long COVID will continue to rise. FFS, when are governments and the general community going to accept that improving indoor air quality, and basic masking, are two of the best and most sustainable protections we have against all air-borne...
  9. Sean

    Adam Mastroianni - blogs on research methodology

    Fun fades, but irritation is infinite. IIRC, Claude Shannon, one of the greats of 20th century science, said he was not motivated by any grand noble principles or ideals, like the search for truth, or wanting to do good for humanity, etc. No, it was simply being irritated by the flaws and...
  10. Sean

    Australia: New network to support ‘often misunderstood’ conditions

    Don't expect any help from the RACGP.
  11. Sean

    Guardian piece on"Lyme"

    They are just telling bald-faced defamatory lies about what patients think, as they always have. This has been going on unchecked since I first started finding out about the situation in the mid-2000s, and it is not improving.
  12. Sean

    Guardian piece on"Lyme"

    By some perverse anti-logic it somehow just keeps getting worse, doesn't it. This cruel drivel just metastasizes unchecked throughout the whole health system. Exactly. At this stage, that should be the entire message for patients. Followed by a grovelling apology for allowing matters to...
  13. Sean

    Review The High-Risk Model of Threat Perception Modulates Learning of Placebo and Nocebo Effects and Functional Somatic Disorders 2025 Wickramasekera

    Some functional somatic disorders (FSDs) originate as acute nocebo somatic effects and can become 30–50% of chronic somatic presentations to primary care physicians. A claim for which there is not a shred of evidence.
  14. Sean

    Metaresearch on patient-reported outcomes in trial protocols and results publications suggested large outcome reporting bias, 2025, Heravi, Busse et

    Or at least easier to point out. Getting it taken into account and acted on is another matter entirely. As we have learned the hard way. And data.
  15. Sean

    News from Germany

    highlighting the importance of expectation management. The real question that needs answering here being whose expectation is it that needs 'managing'?
  16. Sean

    Preprint The Potential Causes Of Myasthenia And Fasciculations In The Severely Ill Me/Cfs-Patient: Role Of Disturbed Electrophysiology, 2025, Wirth et al.

    I used to get these quite a lot early on, mainly in the thigh muscles. Not so much anymore since I got better at overall management.
  17. Sean

    Embodied wisdom: towards acceptable and helpful explanations for functional somatic symptoms, 2025, Saunders et al

    Exactly. All this extravagant rhetorical window dressing just to avoid having to say: 'We don't know. We got nothing.' Nothing new under the BPS sun indeed.
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