Search results

@ME/CFS Skeptic's excellent response has now been published: https://www.bmj.com/content/387/bmj-2024-081318/rr-5

I have to admit: I did not have ultrasound-assisted preparation of sweet corn cob polysaccharide selenium nanoparticles on my bingo card.

Another excellent takedown. I hope you can work with David and others to make sure all of this gets back to the editor.

Jumping on this thread to say that on Monday evening I had onset of what feels like it might be BPPV. I was just led in bed watching Masterchef and I sat up or got up to the toilet and had the spinning room sensation. I guess it was more vertigo than dizziness. I thought I'd just go to sleep...

Not one mention of ME/CFS, CFS, or even 'chronic fatigue' — just one instance of 'chronic post-viral syndrome.' At this point it's deliberate ignorance and obfuscation.

Excellent letter.

I briefly took 5HTP in 2012 after my onset of CFS-like symptoms, many years before meeting ME criteria. I can't even remember why now, but I suspect low mood, given I didn't want to try an anti-depressant at that stage. I don't think I stayed on it very long, and I can't remember how it went. I...

I have a feeling this review will be instrumental in pushing CBT/'rehab' programmes into the future. The review is terrible, and I'm not saying that just because I don't like its conclusions. It's really badly done — they've broken numerous standards for systematic reviews and evidence...

I don't know if this is a new initiative or not. They seem to have lots of signatures already. Anyone know?

Does this need its own thread in the Advocacy sub-forum? Seems important. Done

I would agree that some of the low quality studies we see — pushing supplements and complementary medicine as treatment; focus on unevidenced hypotheses — is doing us harm in that they trivialise the illness and they also make dubious claims. On the latter point, I think of the example of all...

Thank you. Have just seen that; I missed all the discussion around that time.

My rapid response has been published online. I am just looking back at the REGAIN BMJ publication and it seems that they had to correct their main conclusions to state that the results were based on a specific population of patients, namely adults with post-covid-19 condition at least three...

I have submitted my letter. At least I think I have; the page took a long time to submit.

Thank you both. Edited to add 'therefore not'.

I thought I'd have a go at writing a response, focusing on a couple of linked issues regarding the review's reliance on just one study for each main conclusion, and specific problems with the REGAIN cohort. @ME/CFS Skeptic's X thread helped me put this together, but he is doing a deeper dive...

I have found one study that reports non-hospitalization is associated with increased risk of developing CFS. https://www.sciencedirect.com/science/article/pii/S1876034124002934

Is anyone aware of studies that have quantified the severity of initial COVID-19 infection and development of ME/CFS? We know that (i) ME/CFS can develop after any severity of acute infection; (ii) patients often report development of ME/CFS after mild or moderate infection; but do we have data...

@ME/CFS Skeptic are you intending to submit a response to this article?

Print article in the Telegraph — complete with a terribly misquoted pull quote stating:“The effectiveness of CBT and rehabilitation implies that long COVID is not real but psychological.” I guess this is the icing on the cake. Can't see Garner and co being in any rush to call the Telegraph.