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Thanks. I've not heard of this. Looks like it is only used by certain trusts.

Thanks. Might post on Reddit. Are you saying you can see your hospital invite letters and then confirm, rebook, or cancel your hospital appointments in the NHS App? I can see letters from consultants etc in my NHS App, but this is different.

Not really sure which sub-forum to post this in, but anyway.... Some of you may be familiar with the NHS patient portal, which is used to manage hospital appointments. This is not the NHS app. Usually, you will receive a text message telling you of a new hospital referrals/appointment. The...

Related editorial (also paywalled): https://www.ahajournals.org/doi/10.1161/HYPERTENSIONAHA.124.23716#

Abstract BACKGROUND: A subset of patients with postural tachycardia syndrome (POTS) are thought to have a primary hyperadrenergic cause. We assessed clinical biomarkers to identify those that would benefit from sympatholytic therapy. METHODS: We measured sympathetic function (supine muscle...

My main issues with Garner, aside from his behaviour and patient bating, is that he was ill for barely six months. Anyone with rudimentary knowledge of post-viral illness should understand that even at six months the probability of natural recovery is high. Whether the brain retraining / BPS...

I literally forgot about this email threat Paul Garner supposedly received: https://www.livpost.co.uk/p/professor-paul-garner-was-delighted I would not put it past him to make up something like this.

Never trust a newswire, especially if it's from a biotech company.

What I want to illustrate is that MRC is not getting the proposals. I think some patients are convinced there is a conspiracy at MRC to reject any ME/CFS grant applications. The MRC grant success rate is approximately 20%. So statistically we need five proposals to get one funded. The number of...

I don't think these figures are widely made available, apart from when funders are asked to provide a figure. It takes someone crawling through research awards totting up the total amount to arrive at a figure. Interestingly, this piece of work has revealed that the figures quoted by the MRC for...

Not that I'm aware of because usually only data on funded grants are publically available. One could compare funded projects and overall funding levels for any disease/illness of their choice using database searches, but, again, these records contain data about awards made. Data for MRC awards...

I agree, but we are at the point where we need a substantial — i.e., order-of-magnitude — increase in research funding £s/year, and soon. IMO this can only come from policy change at the large funders (MRC and NIHR) to attract new researchers and to establish and commit to ME/CFS research centres.

There have been numerous discussions recently regarding research funding, with particular emphasis on the MRC. We know almost nothing in this space is being funded, but the exact reasons why are unknown. One major unknown is the number ME/CFS research proposals submitted to MRC each year (and...

I think they just want the last word. Don't forget the Barry et al paper was a response to their original paper.

Also, stating that SW is a Non Executive Director of NHS England but that this is irrelevant to this paper is laughable.

They've created a nice little cabal, with Garner providing a link to Cochrane and acting as an authority on evidence synthesis.

"Choosing the wrong trial end-points ----------------------------------------------- A major concern is selective reporting. For example, data from trial primary end-points at 12 months follow-up was left out. This led to the incorrect conclusion that neither CBT nor GET are effective...

Garner and co have written a rapid response to this paper: https://jnnp.bmj.com/content/95/7/671.responses#the-revised-nice-me-cfs-guideline-neither-robust-nor-thorough” "We conclude by calling for these guidelines to be withdrawn, the analyses of data to be redone, and the guideline...

He will probably get new business from this letter.