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That's exactly my point! I don't think we can trust the tests—as has been shown—so its a very hard diagnosis to make, unless there is clear evidence of a bite / rash / acute infection—although I know these are not always present. How did you get your Lyme diagnosis?

That's not what I was saying. Of course you can. I am talking about getting both diagnoses for the same set of symptoms. Not when one clearly follows the other, with a gap in time (particularly if there's evidence of a tick bite / acute infection).

I am talking about people who search for a diagnosis and then get a diagnosis of ME and Lyme. Often there is no evidence of ever being bitten, or of an acute Lyme infection.* I don't know the specifics of your case. * I was speaking to someone just recently who got unwell after a vaccination...

Yeah, I see a lot of this. Seems highly unlikely. Occam's Razor.

I think this is a real problem. You can get a positive Lyme disease test if you keep trying. And the tests are not accurate.

The stuff of nightmares. Thought I'd probably take a brain worm over this M.E hell.

He was a guest on some grifter YouTube channel or podcast recently, where he's saying he wants to 'make a million'.

Thanks, may try this. Some people say just covering the verruca (e.g., with duct tape) can help, so maybe the combination of a plaster with salicyclic acid might work.

I think they got rid of verruca treatment as standard in the NHS. Might vary by trust, but it's definitely not like it used to be. I had a wart frozen when I was at school.

I've had one for the best part of a decade. At various times I've tried to treat it, mostly with over-the-counter gels such as bazuka. In Feb–March I had several sessions with a podiatrist, including 2 x debridlement and one quick session with a 'verruca pen' which seemed to be some sort of...

His work on ME/CFS has come up on the forum a few times. I have stated here before that I get bad vibes from his work, but I wasn't aware that he was publishing dozens of papers a month, which, as anyone in academia will tell you, is ludicrous.

Precisely this. We need to build a whole network of researchers / give them some sort of incentives/support to switch to this line of research. Perhaps an MRC centre of excellence for infection-associated chronic illness? That's the scale of what is needed.

I'm in quite a bad crash at the moment, and I'm going to have to reduce screentime and stop most of my advocacy work for a while. I might not be able submit my own comments unless this crash subsides. I just want to add two points for now (that others may have already made): (i) EDUCATION AND...

ah ok, that's good.

Yes, was wondering this. There are two potential issues/considerations: (i) is it better to have 50 responses saying roughly the same things compared with just one, and (ii) the response form looks like it might assume responses are from individuals.

Is there really no PDF? EDIT: Ok, I can print to PDF, but strange to have no direct download link.

ha. good spot.

Would not be suprised if this was AI generated.

The 'doctor' guy is a chiropractor who also does holistic therapies: https://atlashealthmethod.com/about-us/

It says treatment plan, which is probably a mix of all sorts of medications/supplements/health + diet advice, similar to what they've always done at the Stanford Clinic.