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Follow-up paper on cost-effectiveness: https://onlinelibrary.wiley.com/doi/10.1111/hex.70357 What a giant waste of resources.

How utterly bizzare.

I think the last direct link was probably when BACME was chaired by Gabrielle Murphy, but she stepped down a few years ago.

That depends what you mean by 'BPS'. BACME was chaired by Esther Crawley back in the day. I don't think there are direct links now, but I suspect several members, particularly those in London, Bath, Oxford and Bristol, have at some stage worked with one of Wessely, Crawley, Sharpe, Miller...

I've just listened to this segment. Charles wastes valuable time talking about historical minutiae of ME in Scotland in the 1980s and ends up completely failing to answer the question about the Delivery Plan. With all due respect to Charles, this isn't good enough. No one listening needs to know...

I think someone has been FOIing the wrong department. I don't know why they'd FOI the Committee on Standards in Public Life.

Some of these videos have <5 views. Why upload them to YouTube unlisted?

Epstein-Barr virus (EBV) is a herpes virus that infects around 90-95% of the global population, and is associated with numerous autoimmune and neoplastic diseases. EBV persists in B cells as a life-long latent infection. Despite its relevance to disease development, the biological basis of host...

Still can't find the actual report. All I can get is the press release (with an awful typo in the lede).

It's looking like we've been sold down the river again. Three years and we get some lousy NHS education modules and £200,000 NIHR funding — not even enough to fund a single trial. I feel sorry for all the patients who have put their energy and time into this. I left the CMRC/MERC PAG when this...

Actually, I think this is exactly what happened. He convinced himself he was going to be ill for years and then he recovered after being introduced to a new way of thinking about his illness. That's probably a really powerful experience. He also happened to retire around this time, which...

Garner's a big fan of this paper

Garner is now retweeting Science Denier in Chief Toby Young claiming POTS is basically social contagion/hysteria and attention seeking.

Damn. I wish I understood what these words meant, especially the bronze casting jewelry making part — which seemed to come out of nowhere.

Abstract Aim Postural orthostatic tachycardia syndrome (POTS) is a disorder with cardiovascular autonomic dysfunction where multiple and variable symptoms are common, including those from the peripheral and enteric nervous systems. We aimed to investigate subjective and objective signs of small...

What does that mean in this context? I'm mostly getting the typical academic jargon of university humanities and social sciences departments.

The MEA seem quite happy functioning like a large support group rather than a change-making national charity.

I was thinking this myself. I know with the PSP and DecodeME there are now established PPI members who I'm sure will want to continue working with Chris and co, but S4ME (members) should be involved where possible.

Rebecca Tolin is one of the more prominent YouTube recovery / brain retraining people.

Well, a bit of good news for once. Probably worthy of its own thread. (Done)