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  1. InitialConditions

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    Also suprised to see this paper only had one reviewer. I don't think one reviewer is ever sufficient.
  2. InitialConditions

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    o_O [A little in-joke I have with myself...] Madness that no co-author, reviewer, editor, or typesetter caught this, especially as it's in the abstract.
  3. InitialConditions

    UK: Dr Sarah Myhill

    I think Dr Myhill revels in it. I think she fancies herself as a sort of renegade, and she knows she has enough patients and other business interests to continue having a good income, even if she can't practise for a while.
  4. InitialConditions

    New Video: Chronic Fatigue Syndrome is a terrible name

    Another good video, Adam. Do you get someone in to do the narration?
  5. InitialConditions

    Experience with LDN? low dose naltrexone

    Yep. I've found the majority of patients underestimate the effect that natural fluctuations have, and sometimes they don't consider it at all. I think a patient is more likely to want to try a new intervention when they are in a crash — feeling desperate etc. Coming out of a crash would likely...
  6. InitialConditions

    Experience with LDN? low dose naltrexone

    Also, what's the latest with Jared Younger's LDN for ME trial?
  7. InitialConditions

    Experience with LDN? low dose naltrexone

    I took it briefly but had no real change (except vivid dreams). It may not have been long enough. I can't remember now why I chose to stop. I tweeted recently about what I consider undue hype around LDN. While it may seem harsh — and there are people in the Facebook group I mention who have...
  8. InitialConditions

    Butterfly symbol for ME/CFS

    I'm not a fan of the butterfly logo. It seems a little old-fashioned and a bit too 'cutesy' if that's the right word.
  9. InitialConditions

    Fold-up chair for kitchen

    That's pretty much what I had seen. Thanks!
  10. InitialConditions

    Article on people claiming PIP, figures, top 50 conditions

    I think it might come under muskeloskeletal, but not certain.
  11. InitialConditions

    What can PwME hope for in 2023?

    I don't think we're gonna get results from DecodeME this year — not after recent delays. Paper writing usually takes at least 6 months. Probably spring 2024 IMO.
  12. InitialConditions

    Fold-up chair for kitchen

    Thanks. Yes, I've seen something like this before. Could be an option, but seems maybe overkill (and a little pricey).
  13. InitialConditions

    Fold-up chair for kitchen

    I guess it's not really a chair without a back. More of a stool — but that would be too low.
  14. InitialConditions

    Fold-up chair for kitchen

    Yep, that's the same design, but the one I saw was more of a chair/perching stool than a small stool. These would be too low (I think), though I will check the heights of these. I'd like a version of this where I could sit/perch at a higher height.
  15. InitialConditions

    Fold-up chair for kitchen

    I recently saw a chair that would be perfect for me in the kitchen. It's one of those where it has x-shaped legs when extended, and at the top has a simple canvas strip for support, with no back. When folded it could be placed in a small gap of say 10cm. Does anyone know what these are called...
  16. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    2.5 years on and my views haven't changed.
  17. InitialConditions

    UK - Energy - suppliers, costs, grants, meters etc

    Merged thread [UK] Cold Weather Payments Apologies for posting a link to The S*n, but they have published a list of postcodes for which either 1 or 2 cold weather payments will be issued for the December cold spell (to those who are eligible)...
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