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Yep. We have to persuade everyone that this time those in authority got it wrong. I think it's doable. It's happening already in some quarters, e.g., with academics willing to speak up about the PACE trial and all its flaws. People are increasingly willing to accept that major institutions can...

https://valerieeliotsmith.com/2021/07/05/beyond-the-nice-guideline-mecomms-and-the-case-for-a-public-inquiry/ Lots to think about. We desperately need both a new comms & PR initiative and a public inquiry.

Yep. The release of the final guideline must be the start of a new campaign for properly funded, safe, adequate, specialist services - not some underfunded network of clinics with no central organisation, aims, or data keeping.

https://doctorswith.me/position-statement-2021-nice-guideline-update-on-treatment-and-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs/

The mindfulness arm tended to be more mindful. :alien:

I've just got a Polar H10. I hope to track HRV and see if the hype is justified.

I don't think we know what exactly the PEM 'issue' is i.e., what was said that prompted a reanalysis, and by who? I can't quite work out the most probable explaination. If this was BPSers, what must they have said? what are they arguing for with respect to actual changes to the evidence base...

I had missed that. He was a co-opted member, wasn't he.

I don't think this is worrying. This 'stepping-out' generally happens to at least one member at each meeting, due to conflicts of interest.

Minutes for a series of four guideline committee meetings in late April have just been uploaded: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents It looks as though the meetings were to consider the recommendations in light of a new 'post-exertional malaise re-analysis'...

I really hate this 'app for everything' approach. My mum lives with IBD. She manages it with medication, but sometimes it flares for no good reason. I have no idea what this tool would offer her that she hasn't figured out herself through common sense.

We don't need it and we don't want it.

Have you not had a response, @Andy ?

This session (Session 3) is chaired by Wessely.

https://www.bbc.com/future/article/20210609-how-long-will-long-covid-last I don't think this has been posted yet. Apologies if I missed it. Reasonably good piece. Quite a few mentions of ME/CFS and speculation about the overlap and what's driving the illnesses.

There won't be another delay. They can only report one delay to stakeholders.

I think it's probably his house. Nice gaff! as they say...

Paul's made a little film:

I've never known someone getting a grant of nearly a quarter of a million as part of a PhD/doctoral training programme.

Publications from the author, here: https://research-information.bris.ac.uk/en/persons/amberly-l-c-brigden/publications/