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Does the NHS primarily use SNOMED or ICD, or both? I'm particularly interested in the electronic health record systems used in primary care.

So the test most likely to be abnormal was plasma viscosity, which I don't believe I've ever heard of....? I'm assuming it's similar to ESR.

They have always as far as I know represented the staff working in the specialist NHS clinics. I'm sure you can join if you work outside the NHS, but it's very much revolves around the NHS clinics. I don't know what percentage of NHS staff in these clinics are members of BACME.

Thanks. I did note the date but missed that discussion. I don't know why the MEA are only posting about it today.

BACME Calls for Cochrane to Withdraw Outdated Exercise Review for ME/CFS https://bacme.info/wp-content/uploads/2025/02/BACME-statement-regarding-the-decision-of-the-Cochrane-Collaboration_.pdf

Quite a loaded name for a conference.

"people with overweight" Is that a new thing? Bizarrely, I first saw this usage only this morning in the title of this article: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(25)00355-1/fulltext

Probably for the best.

Scientific Reports, despite being published by Nature [Publishing Group], is not a quality journal, but this fact isn't really appreciated outside of academia. They accept a large percentage of submitted papers, very often publish trash, and the journal has been implicated in numerous scientific...

Hmm good spot. Papers are extremely similar.

I listened to her audiobook 'It's All In Your Head' last year. Truly awful, and read by someone with the most snooty, patronising tone, which really fit the content. I could not finish it. More here: https://me-pedia.org/wiki/Suzanne_O'Sullivan

It's all very bizzare. LDN seems to have a cult following, much like ivermectin has. I think the LDN Trust puts out questionable literature to entice patients.

I developed Raynauds in my late teens or early 20s. I'm not sure I even have it any more as I don't go outside much, especially when it's cold. It never bothered me too much, but it seems to be indicative of some sort of underlying dysfunction that's likely auto-immune in nature.

https://www.bbc.co.uk/news/articles/cx2gky52p5qo "About 15 years ago, Tim Holt-Wilson noticed a "gradual degeneration" in the warmth of his fingers. The 66-year-old, who lives near Eye, in Suffolk, had already been diagnosed with the autoimmune condition Scleroderma - which caused stiff skin...

This is unfortunate sentence syntax.

I love a story with a happy ending.

Putting myself in the hair loss phenotype as a balding man.

I didn't. At the time I was part of the CMRC PAG and some of these thoughts made it back to BACME members via feedback we were asked to give on a talk Vikki McKeever and Peter Gladwell gave. Also, Sue Pemberton, who had by then left BACME, messaged me on the subject of my blog, so it made it to...

I will share again my blog on this Position Paper: https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I did try to be nice.

Where does the 90% figure come from?