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Yeah if I had a couple of weeks or a month I could maybe do something but 4 days is nowhere near enough time

This is a concern of mine too. I know JE and others are fairly confident there is going to be a sea change and I sincerely hope they are right, but I haven't seen concrete evidence of it yet. Perhaps we should brainstorm what we can do in the event government funding is not forthcoming. I think...

As someone who has had horrendous GI symptoms since covid at the end of 2020, I would be very interested to know if this bears out and also whether this drug is suitable for adults. Edit: Oh it's for MIS-C, I didn't clock that at first I thought general LC.

I have just watched Tronstad's talk - I am wondering if his theories are linked with Fluge and Mella's B cell stuff or if they are separate hypothesis? They are part of the same research group if I'm not mistaken.

Well that gives the opposite of confidence...

My memory is that his work didn't show anything beyond doubt, after he spend months encouraging everyone to board the biomarker hype train.

This is one of the most bizarre things about the psychobehavioural ideology: it is so immensely incredibly wasteful in myriad ways and yet nobody in power ever wakes up to it! As @rvallee has said elsewhere though, this situation could not exist without the deep prejudice and hatred doctors...

So how do we go about this then? Is it a case of wait for DecodeME and everything else, and then approach them as a community? Or is it more a case of someone who knows someone having a cosy chat with this hypothetical Addenbrokes professor in The Eagle?

Exactly! Just that these people don't deterioate.

That could explain why GET doesn't harm absolutely everyone, and there are people who believe it helped them.

This is exactly how I approached retaining/rehabilitating myself when I tried the psychological approach. I became convinced my physiological symptoms were a response by my brain to 'protect' me from drinking alcohol (recovering alcoholic) by keeping me in the house. I remember jogging down the...

Also, I wonder if those planning the second round of Stimulate ICP trials are aware of this study...

Another thought - you have said that the studies you have had advance sight of will bring significant progress but there will likely be more experiments to do before we are in the home stretch. So does it follow that those studies should probably look at severe patients to get the best results...

I think the complication is that I don't know how likely those of us who deteriorated severely from intense exercise would have been to become severe without it. I had a lot of viral hits, several head injuries and countless big exertions in the three and a half years before I began pushing...

What do you make of the fact they found raised IFNy and CD38 in severe patients? As well as TNF and IL-17 which have come up on here before.

See this is totally reasonable and I can absolutely see that being the case. But I got the impression that wasn't what Cliff et al were implying.

It is interesting that they found CD38 and IFNy in severe and not in milder patients..

I find this line of inquiry extremely concerning. The idea that mild and severe are different diseases seems totally illogical to me. You would have to discount a lot of patient testimony to even consider it. Personally, I was mild for three and a half years before becoming severe. I slowly...

I hadn't heard about this! Was this Fluge and Mella too?

How great would it be if this turned out to be true/causative?