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  1. V.R.T.

    JK Rowling new book — chronic illness references

    I wonder if this might not be approached as a teachable moment in regards to why people with ME tend to have a more bleak outlook than suffers of MS or amputees or what have you. Maybe explaining how ME takes away the ability to do basic things/hobbies, see family and friends and the low...
  2. V.R.T.

    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    I found this article a little upsetting, as someone who had a similar quality of life to Khan Harris for nearly four years. I then became bedbound after being convinced my fatigue was partly psychological and trying to exercise my way out of it, then catching Covid a couple of months later. I...
  3. V.R.T.

    The Expectation Effect - David Robson BBC

    https://www.bbc.co.uk/programmes/articles/3gxJbg6f1FDv4tzrbtfp1Y3/how-your-expectations-can-transform-your-life Steam came out of my ears when I read this. Literally magical thinking, as far as I can tell.
  4. V.R.T.

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Unfortunately I think it was a closed conference (researchers only). I really want to know what he said (if anything)!
  5. V.R.T.

    Long Covid in the media and social media 2022

    This happened to me after worsening to severe following Covid. Cardio recommended intense physio... The rehab team called me and said no way are we putting someone with LC through this.
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