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And yet was once considered a fairly competent head of the Work and Pensions select committee?:emoji_thinking: Make it make sense please...:emoji_face_palm:

Ah! I have looked into this. A key piece of PRT evidence is "Do your symptoms come and go and do they move around to different places" if so, this means they are neuroplastic, according to this theory (I listened Alan Gordon's audiobook) This means they don't need evidence; you create it...

Which is why they are so determined to stick to their guns on this? Plus they have already spent the savings, apparently. Which won't be as big as they think, given they are just moving the costs around, including to local government emergency funds. The longer goes on, the more it becomes...

Number of Labour rebels passes 120 & Sir Sadiq Khan has come out in support. https://www.theguardian.com/world/2025/jun/24/keir-starmer-says-government-will-stand-firm-on-disability-welfare-overhaul I don't think Starmer is helping himself by insisting there is a moral case for cuts, when his...

How did they arrive at this magic figure? If I attempted to do 30 mins exercise it would probably finish me off! Does this happen with everything medical now; seems harmless <<shrug>> Best guess is not evidence

Thanks for looking into this Trish You can take screenshots (and rolling screenshot for long pages) of apps on your phone and use Google lens in Google photos to copy text to paste to another document or a post here. I also use voice typing on my phone and laptop. Hope this helps

Really? I did not know that. That is disappointing as I keep being pointed to groups hosted on there and had hopes for some decent non-ME conversations.

Thank you for your summary, clarification and investigations @Trish . This is all extremely opaque and very concerning.

It feels like we are in a nightmare endless loop of fighting the same nonsense a certain person started in an endless, pointless death spiral - it never goes away, they keep saying the same thing over and over again because this time it will work, this time they will get the answer they want and...

I suspect they are counting on none of us having the energy, and who would listen anyway..?! This stuff is all out in the world and has made zero difference. They have so effectively gas lit us and poisoned the well that a) it sounds like an insane conspiracy theory and b) we can be dismissed...

Quite literally; the PROMS project links back to a paper published in 2013 which I understand links back to another arm of the original PACE project. I feel this is bigger than even this discussion and the info should be passed to George Monbiot.

Sorry! Didn't read this properly . Thanks for paying proper attention Trish :)

It was all moved to one thread: https://www.s4me.info/threads/the-elaros-nhs-digital-system-for-patient-clinician-digital-sharing-questionnaire-data-includes-yorkshire-rehab-scale-and-open-oh-app.39324/

Thank you for this post @Trish . You have joined a lot of dots that I had spotted and was struggling to make sense of. This is extremely concerning indeed. I also fear that any concerns raised will be attributed to us being "anti-recovery activists" and dismissed. Edited for spelling errors

ELAROS have replied to the comments on the MEA Facebook post: [MEDIA=facebook]1163775829109781[/MEDIA] And directly to one person's concerns, saying that the DWP will have no access to data, they are merely a funder.. MEA, particularly Dr S, are very insistent that MEA are not endorsing this...

"supporting" is doing a lot of very interesting work here And there you have it...

Much like the infected blood scandal, the post office scandal - which had the justice system involved as people went to prison, Hillsborough, which had the police and mainstream media complicit. It is all based on people's need to disbelieve other people's reality and think themselves superior...

1. Where did it go? 2. What treatments/outcomes do you have to show for this investment? 3. covid is not "over" so why are the clinics being closed / defunded? Maybe sound less pleased with yourselves when you have achieved the square root of nothing and wasted £314 million doing it Full...

Isn't this deprogramming?

It wasn't entirely wasted; I found it incredibly helpful and learned things :)