I'm mostly sharing this because there have been a couple of articles about this study here in Hungary in the media in the last couple of days. And there was one article on a health website that said that the health conditions with the strongest association with depression are CFS, fibro, IBS...
Abstract
The heterogeneity and complexity of symptom presentation, comorbidities and genetic factors pose challenges to the identification of biological mechanisms underlying complex diseases. Current approaches used to identify biological subtypes of major depressive disorder (MDD) mainly...
Bruce K. Patterson,
Jose Guevara-Coto,
Javier Mora,
Edgar B. Francisco,
Ram Yogendra,
Rodrigo A. Mora-Rodríguez,
Christopher Beaty,
Gwyneth Lemaster,
Gary Kaplan DO,
Amiram Katz &
Joseph A. Bellanti
Abstract
The absence of a long COVID (LC) or post-acute sequelae of COVID-19 (PASC)...
It was an unreasonable and uncalled for reaction to a quite polite request asking for help. Not surprising though, considering her history of mass blocking (often completely unaware) people on Twitter.
Bautista apparently sent out a press release about his groundbreaking treatment.
CFS Recovery Leads the Way with Brain Retraining for Chronic Post-Viral Syndromes
CFS Recovery has introduced a groundbreaking nervous system recalibration program designed to address persistent post-viral...
Updated consensus statement from the European Academy of Neurology. No mention of ME/CFS or PEM.
These are their statements on long covid, sorry about the formatting:
After recovery from COVID-19, some people may develop fatigue, muscle aches, problems with memory and attention/concentration...
Management of patients with neurological diseases considering post-pandemic coronavirus disease 2019 (COVID-19) related risks and dangers — An updated European Academy of Neurology consensus statement
Saša R. Filipović, Serefnur Özturk, Daniel Bereczki, Benedetta Bodini, Francesco Cavallieri...
Protest in Berlin:
People who are affected by ME/CFS during a lie-in demonstration
No touch, no light, no sounds - those afflicted with ME/CFS find their daily life severely restricted. This is the focus of a protest by those affected.
- People who are affected by ME/CFS during a lie-in...
The Observer letters: ME: we need more funding and more research
Two responses to Alastair Miller's awful opinion piece a couple of days ago.
Alastair Miller claims there have been “years of well-funded research” into ME (“Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS...
Personal anecdote, not about questionnaires but similar about gaming etc these:
I was abused as a kid and there was this occasion when I was seen by a psychologist. I was quite little, definitely 10 or younger at primary school. I remember that I had to do a couple of different tasks that were...
iNews:
I had ME and almost died – my doctors gaslit me
There is a lot about Maeve in this article, clearly the current inquest into her death was the reason Lucy Rowett's story inspired an article too but Maeve's thread can get very busy, so I thought it was a better idea to post this article...
The Guardian:
Maeve Boothby-O’Neill’s harrowing case highlights clashing NHS narratives on ME
by Alastair Miller
"Given this, it was perhaps sadly inevitable that some people would question whether ME/CFS was a “real disease” or was “all in the mind”. Indeed, the original description of ME...
This reminds me of the time when I sent a letter to the Hungarian Academy of Sciences after Professor Janszky, a neurologist, made same pretty horrible unsupported claims about ME/CFS patients at the long covid symposium of the academy. He was just regurgitating stuff Sharpe and the BPS crowd...
Just adding my recent anecdote about this. Background info: there is basically no original local coverage of ME/CFS or LC here. Almost all the articles you can read about these diseases here in the media are translated from foreign articles (from English or German-language media). Usually it is...
Another article in US News:
COVID-19 Won't Raise Odds for Chronic Fatigue Syndrome: Study
The news outlets are picking up the press release, more of these articles may come.
Key Points
Question Does prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)–like illness differ between individuals with an acute infection–like index illness who are COVID-19 positive or negative?
Findings In this cohort study of 4378 participants, the weighted...
This reminded me of the French animated series Once Upon a Time... Life that aired when I was little. All I remember now is the red blood cell characters always carrying oxygen on their back and that sometimes an invader arrived that needed to be fought (a virus, etc). It was for little children...
An abstract from the PhD Scientific Days in Budapest just a few days ago:
Viral infection associated pediatric gastrointestinal disturbances in the context of the COVID-19 pandemic
Author(s)
Dr. Réka Garai1, Dr. Vivien Herczeg1, Dr. Fanni Kovács1, Dr. Anna Máthé2, Dr. Ágota Nyírő3, Dr. Péter...
BBC: 'I'm scared my daughter will die in hospital'
A man says he is terrified his daughter will die in hospital due to what he says are failures in care by NHS staff.
Pierre Naoum, 62, from Hounslow in west London, says his daughter Carla, 23, who was diagnosed with myalgic...
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