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Btw, the guy I have to meet, János Réthelyi, the Head of the Department of Psychiatry, seems to be mostly interested in the biological background of psychiatric diseases, the genetic background of schizophrenia and ADHD and the genetic background and environmental risk factors in developing...

Dr Beáta Sebestyén, the Head of Department, Department of Quality Improvement (from the Ministry of Interior) just called me on the phone after I sent them a short email yesterday asking about the promised consensus recommendation. I asked how it is going and why they said "they found...

Radio Free Europe has created a video about long covid in Hungarian. It is about 10 minutes long and two members from my ME/CFS Facebook group share their story and experiences in it, Beáta Szabó and Edit Tarjányi (they are the only pwLC in it). The reporter also interviewed Ádám Dénes brain...

An article was published about this study, with one of the researchers speaking about it. The article is kind of self-congratulatory, also, they are developing a test. No mention of ME/CFS or PEM or similar. I asked ChatGPT to translate: A groundbreaking long-Covid study has been conducted at...

Oh yeah, I remember when I was a teen, violent movies and video games and Marilyn Manson personally were responsible for all the teen violence. Also, there was a book in our high school library titled "Satanism and Rock Music" about what terrible effects rock music has on youth. We were excited...

Full title: Transcutaneous electrical nerve stimulation for fibromyalgia-like syndrome in patients with Long-COVID: a pilot randomized clinical trial Alejandro Zulbaran-Rojas, Rasha O. Bara, Myeounggon Lee, Miguel Bargas-Ochoa, Tina Phan, Manuel Pacheco, Areli Flores Camargo, Syed Murtaza...

I was very athletic before my ME/CFS onset. I did strenuous workouts regularly, HIIT and strength training mostly. These were really hard workouts, not for untrained or moderately trained people. Since this was a lifestyle for me, whenever I caught a cold, I kept doing my workouts like nothing...

There was someone in my FB group who lives in Switzerland and she mentioned how great it is that there are rehabilitation clinics for long covid there and she even said there were some special programmes for people that present with ME/CFS type symptoms (so people who have PEM, I guess?). She...

Katherine Huang, Alex G. C. de Sá, Natalie Thomas, Robert D. Phair, Paul R. Gooley, David B. Ascher & Christopher W. Armstrong Abstract Background Diagnosing complex illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is complicated due to the diverse symptomology and...

The final version of the detailed critique of this review is now published on mecfs.hu in Hungarian: Kritika a Long COVID – neurológiai vagy szomatizációs betegség? publikációhoz (Ideggyógyászati Szemle) You can also read the Google translated version here, although due to the language...

Interesting claims from Bettina Hohberger from the German Fatigatio Facebook page (FB translation)...

I'm wondering about how to address all this. I'm not sure there is a point in sending a letter to the paper, Janszky is a consulting editor there, whatever that means. (It is called Ideggyógyászati Szemle/Clinical Neuroscience and it is indexed by PubMed, Google Scholar etc.) I'm also not sure...

Something else I forgot to add: Janszky is the neurologist professor who gave a presentation at the LC symposium of the Hungarian Academy of Sciences and which basically was a "best of Michael Sharpe, etc". He talked about militant ME/CFS patients threatening researchers, how researchers were...

I have read it and it is pretty awful. A quick summary: The first half is not so bad, it is a review of all the biomedical theories about the etiology of long covid. However, there seems to be a clear BPS bias towards psychosomatic explanations in the second part. There is a very heavy...

Background and purpose – Post-COVID condition (also known as long COVID) is a syndrome characterized by persistent symptoms following a suspected or confirmed SARS-CoV-2 infection, lasting for at least two months and are not attributable to other conditions. The most common symptoms include...

Full title: High prevalence of long COVID in anti-TPO positive euthyroid individuals with strongly elevated SARS-CoV-2-specific T cell responses and moderately raised anti-spike IgG levels 23 months post-infection Zsolt Matula1 Viktória Király2 Gabriella Bekő2 Márton Gönczi2 András Zóka2 Róbert...

I don't have the energy to say more right now but I've been reading your posts and I think you are doing great with all this exploring and trying to navigate things (while not having the same background or experiences as other people due to such an early onset of the disease). I know you have a...

I don't have access to the full article but this cannot be anything good. The Telegraph: It’s the illness that has no cure. But this doctor believes he’s found answer to chronic fatigue syndrome Chronic fatigue and long Covid remain poorly understood, but Dr Perrin’s unusual techniques are...

Full title: Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria Peter Gamillscheg, Agata Łaszewska, Stefanie Kirchner, Kathryn Hoffmann, Judit Simon & Susanne Mayer Abstract Background Long COVID-19...

Another article about Ádám Dénes' long covid research, this one is from the website of the Hungarian Academy of Sciences as some sort of a teaser for the upcoming event of the Academy on long covid (you can find details of the event in my post above). The article is quite long though (and it was...