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  1. MrMagoo

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I think all the people who are getting fired for sickness absence from the NHS are a bit p-d off that they caught Covid at work in the NHS. Imagine going to work for the state during a pandemic, getting ill, then permanently disabled and unable to work. Then the state doesn’t recognise your...
  2. MrMagoo

    Daily stress and worry are additional triggers of symptom fluctuations in individuals living with Long COVID... , 2025, O'Connor et al.

    Breaking news : Study finds that prompting people to ruminate every 3 hours causes rumination. Aren't there supposed to be ethics for these kind of psychological experiments?
  3. MrMagoo

    How do we stop charities and influencers spreading bio-babble about ME/CFS?'

    Oh wow I am never asked, they always come at me with the micropore then get offended that I say it gives me a rash. Last time I was pointedly told “we don’t have plasters instead, because they give everyone a rash” which seems like either a pointless tit for tat lie, or a bizarre coincidence.
  4. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    It’s cultural. I’ve been in tribunals where large employers say phased return didn’t suit because we have too much work on, so they had to come to work on their usual pattern. Not for specialist jobs, but for admins etc of whom there were 100s but they can’t spare 1 person doing reduced hours...
  5. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Wasn’t someone going to ask Sarah Boothby?
  6. MrMagoo

    Cold or PEM?

    I still find that kind of crazy, despite years of experience! I still don’t really know whether I had Covid in March 2020 or if I had a massive crash. Or both.
  7. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Do you think we should ask them to stop the campaign?
  8. MrMagoo

    Cold or PEM?

    Yup, I recently did a Covid test on my PEM. Years of experience tells be I can judge after it’s tailed off, but I still wonder whilst in the midst of it!
  9. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    I suspect it’s secondary gains rather than “treating” the condition.
  10. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Everyone references it, doesn’t mean you can get a bed there. Idont think they take inpatients at all? Also I don’t believe they treat S/VS, because there isn’t a single S/VS bed in the UK. And the point of the J4ME update was the government seeming to acknowledge the need for an S/VS service...
  11. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Maybe, I thought it was closing down though?
  12. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Oh, I think it means they will have to put funding to the delivery plan for a S/VS service. So that’s quite a good win. I’m not sure we can rubbish it as a “doomed to failure” rehab unit at this early stage. Leeds has been closed a long while.
  13. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    My experience is opposite. I spent a whole HR career harassing managers to make entirely inconsequential, easy “reasonable adjustments” crossing out grossly offensive comments about staff in OH referrals, letters, emails and explaining that they couldn't fire someone because dialysis is...
  14. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    I actually haven’t read it, it wasn’t making much sense. I assume you’d need to read it alongside the document itself commenting on.
  15. MrMagoo

    UK: #JusticeforME fundraising for legal case for UK Government to provide specialist ME/CFS medical care

    Updated Update on NHS care for ME now Everyone who knows anything about ME knows pressure of time is not conducive to optimal health. Your support in enabling us to instruct lawyers to represent the interests of people living with the diagnosis (and nobody else) has been astonishing...
  16. MrMagoo

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I wasn’t sure whether we had a thread about #justiceforME but there’s been an update to their campaign
  17. MrMagoo

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    When I worked, in an office they wouldn’t let me have a phased return or a work from home day, so I don’t have much confidence in “barriers being removed”.
  18. MrMagoo

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    Yup, that’s me. Peter White Pooh-poohing GP’s diagnosing ME and giving people an alternative diagnosis of depression, fibromyalgia etc should not, in my opinion, be cited as evidence of anything other than Peter White’s incompetence. Obviously in my case he was wrong, how many others? My GP...
  19. MrMagoo

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    The link doesn’t work. Is this the White study that I’m in where he said I was wrongly diagnosed with ME except he was wrong, I do have ME. That study seemed to be Peter White blowing his own trumpet and telling 40% of referrals to his clinic that they didn’t have ME they were depressed or had...
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