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  1. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    I found this am sure we had a thread on it https://www.robots.ox.ac.uk/~mosb/public/pdf/3535/Aitken%20et%20al.%20-%202024%20-%20Smartphone-based%20monitoring%20of%20heart%20rate%20variability%20and%20resting%20heart%20rate%20predicts%20variability%20in.pdf
  2. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    I think that if you look at the workwell foundation info, they are claiming that keeping heart rate low leads to less PEM. The document is here and there are only two studies cited. They refer to the 2 day CPET test. https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf I...
  3. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    I mean it hurts to bend my legs afterwards and they burn and seize and are stiff.
  4. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    This is the references from Workwell’s guidance
  5. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    Wow I get lactic acid buildup from having a shower
  6. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    I can go over it by drying a dish. It’s all relative. I’d imagine if I was severe/very severe I’d go over it if someone started banging around or told me sad news.
  7. MrMagoo

    What empirical evidence is there that heart-rate monitoring helps avoid PEM?

    If I recall correctly, Visible data was used by someone and they're claiming they can “predict” crashes. Maybe Visible themselves, or Putrino? Whatever it was, over a year ago, I wasn’t convinced and I like my Visible a lot. Personally I agree with the above- it broadly shows you want is...
  8. MrMagoo

    Distinguish ADHD symptoms from ME/CFS symptoms?

    I know a few men who are more like the “ADHD in Women” I doubt there’s a difference, probably just that a certain ADHD type was ignored until it became clear, was seen in women first just like the hyper-cant sit still type was recognised in men (and thought to be all that ADHD was for a time).
  9. MrMagoo

    Distinguish ADHD symptoms from ME/CFS symptoms?

    Sometimes if I have the time and energy, I like to let my brain run riot and bounce around, half-thinking about 5 unrelated things at once. Writing half a note, thinking of something, writing another note, reading the notes back and not even remembering them. Other times having a “crash”is...
  10. MrMagoo

    Distinguish ADHD symptoms from ME/CFS symptoms?

    You may not be a fan but I like the little cartoon slides people make on Instagram, see examples below. They are good for prompting areas to think about. It was the “finishing people’s sentences” for me! I can’t help it. I hate doing it but I still do it! Also I read ADDitude magazine online...
  11. MrMagoo

    Distinguish ADHD symptoms from ME/CFS symptoms?

    Your answers align with what I was thinking…the ADHD usually in Women is the Attention Deficit part, or Hyperactive Attention. It’s much more related to executive functioning issues. If you are fairly intelligent you will have learned what is expected of you, and found ways to “make it happen”...
  12. MrMagoo

    Distinguish ADHD symptoms from ME/CFS symptoms?

    I think I am undiagnosed adhd. I think the fatigue and exhaustion of ME makes it harder to compensate/mask the chaos, pre-ME I was doing more that twice as much work as a regular person to produce the same outcome (I.e turning up in clean clothes, knowing what was going on and where I needed to...
  13. MrMagoo

    BBC Claims That Brain Retraining Can Alter MRI Scans

    They even said on the film that there are fluctuations at different times though. Also stress makes the amygdala bigger and mediatation made it smaller but she didn’t think she was stressed at all to start with. Why does everything have to be a binary opposition and a quid pro quo.
  14. MrMagoo

    [CBT] for Cancer-Related Fatigue: A Comparison Between Patients Treated With Curative Intent and Patients With Advanced Cancer 2025 Knoop et al

    God forbid you catastrophise as you’re dying in agony from a terminal disease. What next “cheer up, it might never happen”?
  15. MrMagoo

    Open UK BACME tube feeding survey 2025, closes 30th September 2025

    I hate this “get out of jail card” every long rambling survey has adopted “We realise this may be difficult/draining for people to complete, but” Aka …we can’t be bothered designing something with you in mind, so here’s the usual old nonsense, don’t accuse us of not caring
  16. MrMagoo

    Opinion Nociplastic pain: controversy of the concept

    Schrödinger’s illness. There’s an illness in the human somewhere, but if we look into it we might find out the cause.
  17. MrMagoo

    Where are the invisible? An interactive map of pwME

    They have been on my feed too, some brilliant stuff then some questionable stuff.
  18. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    What’s worse is the DWP is the biggest source of employees taking their employer to a tribunal for disability discrimination. They would happily employ you, mistreat you, fire you for your absence then refuse you disability benefits without a hint of irony.
  19. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Well you can type, cant you? I can only assume they wish to save money by cutting people off for no reason then making them go through months of appeals, whilst becoming unwell and homeless, on the off chance they get benefits reinstated at a later date.
  20. MrMagoo

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Saw this and am immediately worried again. They want to -initially voluntary- have regular contact with LCWRA to do skills and preparing for work https://www.mirror.co.uk/money/dwp-start-contacting-those-sickness-35941629
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