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I think maybe it was a GWAS to start with, and they decided to do the whole genome recently. This protocol for RECOVER from 2022 says a GWAS will be a part of it.

I don't think I've heard anything since they announced they were doing WGS in January.

RECOVER was planning on doing whole genome sequencing for long COVID. I would assume they asked participants questions about having ME/CFS.

Thanks for sharing @DHagen. That's wild. Are they not responding at all, or just not answering what dosage to take?

Probably good for business that many people recover from long COVID naturally after a few months. If they happened to be seeing one of these doctors at the time, it'd be easy to mistakenly connect recovery with one of their treatments and then spread the word.

Holy cow. On first read, I thought those were fees a doctor paid to be allowed to practice in and get patients from this health network. Who can afford that?? Here are Dr. Ruhoy's fees. For the most value per dollar: $8500/month to get 2 hours of time with her per month, 45 minutes with a...

Advocates of Research-Supported Treatments for PTSD are Losing in Lots of Ways: What Are We Going to Do About It? Keith S. Cox, R. Trent Codd, III Abstract Most individuals with posttraumatic stress disorder (PTSD) do not receive science-based treatment. This is a massive problem and the...

Reaction time deficits in a 3D virtual reality test in patients with ME/CFS Anja-Maria Ladek; Marianna Lucio; Christian Y Mardin; Bettina Hohberger [Line breaks added] Purpose Chronic Fatigue Syndrome (ME/CFS) is a debilitating post-infectious disorder affecting approximately 140,000–310,000...

Editorial about this study: Unraveling the immune responses in long COVID through cytokine profiling Oh-Hyun Cho [First paragraph with line breaks added] As the unprecedented COVID-19 pandemic begins to subside, increasing attention has been directed toward the post-acute sequelae of...

Cytokine profiles associated with persisting symptoms of post-acute sequelae of COVID-19 Ji-Soo Kwon, Euijin Chang, Hyeon Mu Jang, Ji Yeun Kim, Woori Kim, Ju Yeon Son, Junho Cha, Choi Young Jang, Seongman Bae, Jiwon Jung, Min Jae Kim, Yong Pil Chong, Sang-Oh Lee, Sang-Ho Choi, Yang Soo Kim...

I added a comment on PubPeer a few days ago about how the discussion flips the direction of causality for cheese and says fermented cheese is protective, even though fermented cheese is never mentioned in the results. Someone else just added another comment pointing out more issues: The...

After misinterpreting harmless signals from the body, such as exercise, as harmful, right?

What it says is known about causes:

They found clear evidence for this variant causing Bell's palsy from a meta-analysis of 4 GWAS's, all showing the same effect direction. But it's in an intergenic region, and they weren't able to associate it with any specific gene, so it's not clear what it does.

A meta-analysis uncovers the first sequence variant conferring risk of Bell’s palsy Published: 18 February 2021 [Line breaks added] Abstract Bell’s palsy is the most common cause of unilateral facial paralysis and is defined as an idiopathic and acute inability to control movements of the...

That sounds like what Grigor said. He said the idea is that the brain is misinterpreting the signals, not "people".

Oh, the paper says:

Yeah, looks like to me like AI was used for this paper. Similar to the recent US public health review: - https://www.politifact.com/article/2025/may/30/MAHA-report-AI-fake-citations/

There appear to be a lot of issues with the references. As in many don't seem to exist. I looked at the first 10, and couldn't find the following papers. I emailed Stephanie L. Grach, who has authored ME/CFS-related papers, about ref. 4, and she said she was not involved in that paper. More...

Here is their reasoning, but probably look at my next post first. References