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  1. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    You’re right. I’m so fed up of the fundamental misunderstanding that “today” isn’t a “new day” or “clean slate” it’s a day with a history of struggles, pain and symptoms. Every day is. This basic cookie-cutter approach has as much use as those diets you used to get in the newspaper/magazine...
  2. MrMagoo

    BBC Article: discussing brainfog

    I see the usual “are you stressed? don’t get stressed” tm NHS advice is at play here.
  3. MrMagoo

    Ozempic, tirzepatide and other GLP-1RAs - impact on ME/CFS

    There is some thought and anecdotal evidence that GLP1 meds reduce impulsivity somehow. This seems to have possibilities for use with various addictions, possibly ADHD and I can see how it might help with bipolar. People seem to want something which works for one thing to cure everything these...
  4. MrMagoo

    Why the BPS people think the way they do

    Again, it’s reinforced by society. They are doing “good” work and they are “good” people, middle to upper class, working in the NHS with the less fortunate.
  5. MrMagoo

    Why the BPS people think the way they do

    Why would there be a top personality trait though? It’s a job like any job, and a range of people will study for it and progress in it. A personality trait isn’t requisite for the role, and even if it were, we all know lots of examples of people who don’t seem to be in the right line of work...
  6. MrMagoo

    Why the BPS people think the way they do

    The problem is that BPS fits with the cultural hegemony, which makes it easy to perpetuate as people are primed to accept that healthy = good and so good=healthy, I am good and I am healthy, I must be healthy because I am good. This is why people have an absolute fit if they exercise and eat...
  7. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    So it’s still a problem for women, it just isn’t the exact problem that was specified.
  8. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    Only if you ensure you add “not all men” otherwise the debate gets hijacked by “I don’t do that/a woman was as bad/but <insert whataboutery>” there has to be about 75% of any debate of women’s issues overtaken by these diversions so the women don’t get to speak about what’s affecting them...
  9. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    What about medications that aren’t predominantly prescribed to women? Where drugs are tested on men and women is that data separated? https://news.uchicago.edu/story/women-are-overmedicated-because-drug-dosage-trials-are-done-men-study-finds
  10. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    That’s because you’re a man. Have you ever been advised to have a baby to resolve a medical concern? It’s not a race to the bottom, medical care is woeful but we also know it’s worse for women, and for people of colour and the disabled. There are a wealth of studies, a recent one on how women of...
  11. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    It’s the same except you get random extra advice about having a baby or losing weight
  12. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    People think “I can’t still be having these symptoms, I’m having a mental breakdown” I’ve spoken to medical doctors who have this and they think they’re having a nervous breakdown. They’re not, these are the symptoms of disease. Thanks Paul! Good to know people shouldn’t think it’s mental?
  13. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe he’s an unreliable narrator/advisor/commentator
  14. MrMagoo

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yeah cos GPs never jump first of all to this kind of thing being psychological. If I recall correctly, Paul, when this happened in March-April 2020 people gathered online, sharing their experience of being told they should be better by now and maybe they have anxiety/depression. And then all...
  15. MrMagoo

    Why don't doctors trust women? Because they don't know much about us

    It’s institutional/structural misogyny, that’s why.
  16. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I think that this was somehow “sold” as an idea to fit apps and the data set thing was shoehorned in.
  17. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    OMG The PROMs are the new CBT You have to say you’re better even if you’re not (And by that I mean the “reinforcing GET” CBT that made you agree that overdoing it was good and didn’t make you sick)
  18. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I think the PROM is maybe one arm of an audit, if that helps. I read somewhere about a PROM being heralded as brilliant because the patients were having hip replacements and for some reason there were two types of hip being used. PROMs data showed patients had better improvements and faster...
  19. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I have been seen by ME Clinics and diagnosed GP (ME/CFS) ME clinic - Psychiatrist (Fibromyalgia) Rheumatologist (ME/CFS) ME Clinic- Psychiatrist (not ME/CFS) ME Clinic -Physio, with GP attached (never met the GP) (ME/CFS) ME Clinic- GP (ME/CFS) ME Clinic- ID consultant (ME/CFS)
  20. MrMagoo

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I’m not the cleverest but does this mean we are we being treated by humanities majors and not medics?
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