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In the experiment, participants had a chance to receive a (virtual) reward in each trial round if they were able to achieve the required number of button presses. This was a requirement but they did not get it each time they achieved the required number of button presses. There was also a...

I was only able to skim it briefly but it looks like a good blog that identified many of the same issues discussed here on the S4ME thread. One issue that has the title 'False Recording of EEfRT Data' was new to me. Burmeister argues that there are errors in the raw data because the value...

Don't think this review from last year has been posted yet on S4ME. I noticed that it was used as a source in the NASEM report on Long Covid to claim (on page 167) that: "Rehabilitation can improve functional outcomes in people with Long COVID, regardless of the severity of disease or duration...

Abstract Importance: Current rehabilitation guidelines for patients with post-COVID-19 condition (PCC) are primarily based on expert opinions and observational data, and there is an urgent need for evidence-based rehabilitation interventions to support patients with PCC. Objective: To...

This study does not have a direct relation to ME/CFS but it thought it was interesting as a criticism of the term 'functional' for symptoms of nausea and fullness. In short, there is a test where they can measure how fast the stomach empties and patients who have abnormal results for this test...

Abstract Background. The aim of this study was to clarify the pathophysiology of functional dyspepsia (FD), a highly prevalent gastrointestinal syndrome, and its relationship with the better understood syndrome of gastroparesis. Methods. Adult patients with chronic upper gastrointestinal...

Great work

Sorry to hear that, hope you'll improve again soon. Health always comes first.

They defined long COVID as symptoms lasting 3 months or longer after the initialSARS-CoV-2 infection that were not previously present.

Table 2 shows that they tested for 'Fatigue with PEM lasting >14h' and that 35% of the persistent cases had this compared to 0% of the stable controls.

Ok thanks for letting me know. Might try again later.

It's too buggy for me. Had multiple times where it crashed when I tried to save changes. It's also so slow that editing takes 5-10x more time to do than in other programs.

'You will contribute to the social scientific study of illness recovery stories posted to YouTube, developing conceptually innovative and politically vital research.' Weird. This almost sounds like a joke.

Is it my computer/internet or is MEpedia really slow to load?

Thanks I'll try to add some references and improve the text if energy permits. It would be good to have an example of a bad ME/CFS image and a good ME/CFS image clearly next to each other. Perhaps also a section on severe ME and a section that explains core ME/CFS symptoms such as PEM, POTS...

https://thesciencebit.net/category/me-cfs/

These sources might also be useful: How to Report with Accuracy and Sensitivity on Contested Illnesses - The Open Notebook Journalists_-How-to-Report-on-ME_CFS.pdf (meaction.net)

Perhaps we should just try it then. If I understand correctly, MEpedia automatically stores older version so if we want to restore something from it we can always go back to copy it.

All sound good to me. Depends a bit on the other MEpedia editors: will they revert big changes for example if we replace the current with the draft I posted above?

I agree, it should best be rather short and refer to other more respectable sources that provide more info. I've quickly written something down based on the info that was already on the page and other ME/CFS factsheets and guidelines. ME/CFS Myalgic encephalomyelitis (ME), sometimes referred to...