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It’s like the philosophy experiment - if a tree falls in the forest but there’s nobody there, does it make a sound?

Can’t believe he tagged @nice I feel embarrassed for him

I’m a bit over giving GPs sympathy to be honest. The 10 min thing is rubbish, but frankly there are people in call centres dealing with angry or upset people, day in day out, who manage not to be nearly so rude and condescending as GPs have been with me. A call centre worker has never called...

Yes I have met this attitude. I don’t have a consultant treating me, just speak to the GP therefore it’s not serious as there is no hospital involvement.

If only there was a campaign to help doctors be less dismissive

I was invited to join the ME Association “ME Connected” today via insta stories. I clicked the link (for research purposes of course) it took me to the Discord site but then it couldn’t complete the task as the address was invalid. So that’s working well.

Yes the plan was to gather information which could be used as a large dataset on ME - something NICE 206 identified as a gap. Sounds good, right? Sounds like the sort of thing the ME association should fund. Except - the way this dataset would be generated was by the project group of Sarah...

Excited!

A good day to bury news… Hopefully they will be obsolete by the time they’re finished. I can dream!

All quiet on the PROMs front?

Funnily enough, as I have been doing exercises and silent rest over the past 8 months or so, I realised at one point that I was having more and better conversations (strength of voice-wise) however with this came the old problems I’d forgotten about - slurred words, word-finding difficulties etc...

Gutted, I suffer a lot with voice issues and I’d have loved a decent piece of research. I really think it’s an overlooked symptom. When I was mild I-started to lose my voice if I got a bug. Except I didn’t get a bug, it was a little crash. It progressed until I lost my voice for over a month...

Desperate for relevance

I do actually wonder why they have gone about this like a bunch of idiots. They could have spun it differently and minimised the fallout, instead of sniggering and calling PIP pocket money etc. I don’t love reforms but there’s some reasonable stuff as well as the massive cash grab.

I can’t believe Big Pharma isn’t trying to get her shut down!

Thinking about it more, what conditions do exist which manifest “real symptoms” because you think you’re ill? Munchausens/Facetious disorder is not counted as that’s manipulation rather than true belief you have the illness you’re play acting. Health Anxiety can cause issues maybe? Any...

I feel like we need a “zinger” of a phrase, if there was a catchy, snappy, undermining retort it would go viral and shut down this kind of thing quickly and easily. I can’t think of one. I’d probably go with “not this magical thinking solution again!” Or “I’m not “manifesting” these symptoms...

I will never forgive mindfulness for robbing me of raisins. With some barely-overcome disordered eating and ARFID issues I started to enjoy them as an adult. Then, when the NHS CBT and Psychotherapy failed to cure my ME I was directed to a practitioner who asked me to buy a book on mindfulness...

The DARVO is so triggering.

I hated my workplace but miss working. I dream I’ve interviewed for a job then I have to go to work and I remember I can’t when I get there on my first day, and they say I seem fine so I struggle through knowing I’ll call in sick and quit the next day.