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I've participated in several research studies. Back then, being paid helped with my decision to participate, but it wasn't necessary. I'm sicker today. Arguably a bit more cynical as well; at the very least, more practical. If I knew the researcher and liked them, I'd do it without pay, but of...

Bloodwork and CSF, correct? Pretty good for acute infections. Even then, though, the metrics or diagnostics may be problematic depending on the infection. As for persistent infections, those lasting months or years, I'm not sure how strong we are at identifying them; that hasn't been our medical...

Not sure why Lyme is in the mix then. Well, chronic Lyme as they are referring to it. A good portion of whomever they see with a history of Lyme will still clinically present as Lyme, e.g, CDC-positive Bb IgG's. But, eh, it's nice to be included.

Whoa! If true in the US as well, the implications to people like me could be bad. That has to be illegal if they said it would be shared with no one. Tiered pricing, with some folks not allowed coverage? Folks like us?

Gee, with only 17 patients, and all those years, I'd have thought they could look for pretty much any pathogen. Detecting them, that's different. But saying "we don't know what antigen to look for, so we never detected one" suggests to me that somehow not detecting pathogens was in part tied...

I misunderstand some things that are written these days, but I still appreciate the meaning of being flipped the bird.

So much for the concept of differential diagnosis. What happened to doctoring in the investigatory sense? What am I paying them to do, or not to do, because they get my money regardless?

Sorry if I'm detouring the device thing, but I NEVER EVER talk brain PEM with my doctors or familly. So this is a treat. Physical exertion can cause PEM, we all know that and most of us endure it. Brain exertion - yes, that's physical, but it's different - can cause pretty much the same set of...

So, good question. And as far as I can see, maybe. Brain PEM is tricky, at least for me. Clearly, sometimes HR and HRV play a role in predicting or even correlating with brain PEM. Emotions would dove tail there. Maybe forced concentrating on a study or writing like I'm doing now, but I don't...

I cannot see how these devices can help with brain PEM. They do seem to offer ways to avoid overdoing it physically. And as @Kitty pointed out, for newbies what a potential godsend. But the longer Ive been sick, the more the onset of brain PEM destroys who I am and what I can tackle...

First sentence of the abstract slips into assumption with the unequivocal "has recovered".

Many thanks, @SNT Gatchaman .

I could not find this company's website.

Curious they used "persistent" as a qualifier in this context, perhaps even more so with Dr. Kim Lewis there. I'd gladly pay way too much to be seated at the same table as Nath, Hanson and Lewis. Persistence - or at least persisters -would likely have come up at some point. It's been my...

Is anyone really surprised?

You may be right. I was mildly taken aback at the thought the NIH at any meaningful level would suggest persistence. Could you help my brain reconcile your take with this other tweet that seems to suggest something different? I appreciate the handicap that trying to interpret tweets (vs the...

Were it only limited to that crew.

Bad lot, patients.

If this proves to be their finding, it may be important to remember this is the US. There likely will be major institutional resistance. Strike that. There will be depending on which pathogens they invite to the party. I don't want to get ahead of the results, though. But, yeah, politics and...

What an odd statement. If you embrace a persistent pathogen theory, how do you decide which pathogens can be at play, which cannot? That to me would seem one part huge undertaking, and one part dangerous politics.