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Yes, that is a prominent theory, prominent in a couple of ways including who promotes it, and its underpinning logic. It may be correct. In mainstream Lyme circles (some of the manistreamist, so to speak) it's been a sort of Holy Grail to swat away any persistence arguments. But it remains...

Agreed. Genes might prove to be the determining factor. Certainly they have in channelopathies, at least so far, and there is some overlap in symptoms with us there as well. But for a large swath of patients with LC, ME/CFS, and late stage Lyme, there is a clear jumping off platform that is...

" I don't think it suggests that at all, at least it wouldn't rise to the top of my list, and it certainly wouldn't be noted in such a singular fashion bringing up the rear (inconspicuously?). Also, post-Lyme disease seems somewhat dated, or is he making a statement of some sort? That little...

Do you really think it's the patient community that is responsible for the communication gaps which frequent research studies and clinical practices? So, who do you imagine crafts a given set of disease characteristics? It isn't the patients. Sometimes it isn't even with patient input, or it's...

I'm confused by this response. To me it sounds uncomfortable similar to IDSA Guidelines from 15 or so years ago that seemed to many to compare symptoms of late stage/chronic Lyme to (I'm paraphrasing) what many healthy people experience normally as the aches and pains of life. If you've LC, or...

Title aside. There is an assumption embedded in "post-infection" that also leads the reader. Set aside the assumptions and medical politics and let the Science (theory) write the article. For instance, I might as an alternative to post-infection try post-acute illness. But agreed, pretty good...

Drexel University. They've had Judith Miklossy speak at their conferences in the past, so they should have a good familiararity with spirochetal infections of the brain, in particular.

I wonder what the proximity of Respect and Shame is to Fear and Loathing. I'd argue a stone's throw.

The authors in the paper write "Patients who had active/recent Lyme disease as a cause of their symptoms were determined based on established criteria." Whose established criteria? So, is this a retrospective appraisal that assumes a contested diagnostic (probably the STT, that is at the basis...

Radicalized on Lyme groups? As in, forums and such? Does this not sound a bit uncomfortably familiar on any level? I suspect many of them know. ;)

I wonder if VEGF is considered an immune marker, and if they looked at that seeing as how low VEGF values can be, I think, associated with cognitive decline.

Maybe I can field part of this question, at least the Lyme part? As with most things Lyme, it's best to look at history. Before PTLDS was pushed, Post-Lyme Disease Syndrome was promoted. The push-back from the Lyme patient community was loud and swift, and it seems that the "compromise" was...

Just from what you posted at top of thread.

Post-treatment Lyme? Seems political straight out of the chute. Doesn't bode well.

ME/CFS, Fibro, PTLDS, Mast cell disorder, dysautonomia, and now long-haulers. What a fraternity. Good to know the CDC has "established symptom management approaches". No worries.

A number of ideas race at me, none of which is likely good enough to capture the essence: Dereliction of humanity Patient betrayal Failure to think outside the box Failure to empathize Berlin Wall Syndrome, i.e., willingness to shoot innocents to help superiors or State Douchebaggery...

Do medical texts teach "post-acute"? Is that a thing? Or does it go a)Acute, b)Chronic, with recovery/convalescense/or death coming after either a or b? Acute = time limit. Chronic = indefinite.

My limited understanding of the immune system says first 30 days of infection, one's IgM antibodies are at play. If the infection is not resolved, those antibodies give way to IgG antibodies. As our medical culture is primarily focused on acute infections, clinicians are taught that IgGs are...

Yes, good stuff, and for us, unsurprising. But try telling your doctors or friends or family members that exercise can and does actually hurt some people, and although they may Yes you to silence you, they don't believe it. Exercise is a Linus blanket. It took generations to get this shit...

What constitutes a consensus? 80% or higher? Cerebral hypoperfusion as demonstrated by SPECT scans (vs MRI and PET), perhaps? Not sure about this as SPECT scans are more or less frowned upon in US for last few years...