Search results

This. I find this a very bitter pill to swallow. It makes me so very angry that my life has and choices have been taken away because of this hateful, patient blaming approach To add further insuIt to injury, we have to learn how to accept the unacceptable and unjust of diminished lives and...

I don't doubt the S4ME squad, if anyone has the spoons to write, I'm sure it will be polite and factually accurate. I am however deeply cynical as to how any message will be interpreted and how our words might be potentially used against us. He has form, after all.

While justified, would this be playing into his victim persona and persecution complex about us vexatious, militant patient activists?

Moved post Slightly off topic - apologies to the mods - but an article below was interesting too: https://thecritic.co.uk/the-disingenuous-anti-vax-blame-game/ The disingenuous anti-vax blame game - People have short memories about the MMR scare I wasn't aware that Richard Horton published...

I find i can't get close enough to the worktop with a high stool, so end up at a weird angle and keep having to get up to the cooker, sink etc. I have low stool I can sink onto while waiting for thing to boil, cook etc.. which works for me.

I claim my prize; IBS is on that list I've had CBT for my IBS on a group course. By the last session we had stopped taking it seriously and had broken out the sarcasm. Back in the real world, I saw a dietitian privately as the NHS one was utterly clueless and she introduced me to the low...

I was due an ESA reassessment in 2021 it magically got extended, without telling me, but they couldn't tell me how long for. When my MPs office asked, and I was finally given (eventually) a review date at the end of May. When it never arrived, and the the DWP were again contacted, they said "it...

Random thought: The government NEVER move this fast; If they have produced a response to the Work Capability Assessment: Activities and Descriptors Consultation in less than a month, they they were already writing it before the consultation closed, weren't they? And that means they knew exactly...

This. I was mild-moderate until the DWP repeatedly told me I was fit for work - having had to leave my career due to severe health issues, even before I got diagnosed with ME - and I got pushed into part time work. That lasted 13 months before I was physically and mentally destroyed and became...

This is absolutely insane.

Announced yesterday on the DWP page of gov.uk; Back to work boost for disability benefit claimants as ground-breaking employment scheme expanded https://www.gov.uk/government/news/back-to-work-boost-for-disability-benefit-claimants-as-ground-breaking-employment-scheme-expanded "A pilot scheme...

Maybe they are in need of CBT to deal with their false usefulness beliefs...?

From George Monbiot's article, linked in the tweet in this post "Fiona Fox is also the director of the Science Media Centre, the public relations body set up by Baroness Susan Greenfield of the Royal Institution. It is funded, among others, by the pharmaceutical companies Astra Zeneca, Dupont...

"The only thing necessary for evil to triumph in the world is that the good do nothing" I cannot in good conscience stand by and not respond to these consultations, no matter how unlikely we are to be heard. While I can continue to take action, I will. I hope you don't mind @tornandfrayed but...

You can also email your response to: wcaactivitiesanddescriptors.consultation@dwp.gov.uk which is what I am currently working on, at great physical cost, with the long suffering @It's M.E. Linda I attended the online Disability Benefits Consortium meeting yesterday afternoon and the DWP were...

I have had this a couple of times thanks to the addition of Long Covid to my ME. It is truly terrifying as my vision gradual turned into a flickering honeycomb pattern, even when I closed my eyes. It lasted about 20mins each time and has happened when looking at my laptop. I think previous...

This is super helpful, thank you. I have shared it with MEA, AfME and the Disability Benefits Consortium coordinator as well as my local group contacts. Hopefully this will help with numbers of responses.

Thank you :thumbup:

Apologies if this is actually a blindingly obvious question, but I have spent too much time reading various people's thoughts about this whole thing today and my brain has completely given up on me; does the Delivery Plan already have cross party support? Thanks in advance.

if you are anything like me it is more of an uneasy truce from necessity