Search results

So they expected to find PCS patients were less reward-motivated (because of our "anhedonia" causing us to imagine that we're fatigued, innit) but they actually found the opposite?

It's likely that not everyone who currently has an 'ME/CFS' diagnosis will actually have whatever problem the new biological explanation points to. Some will be left as a 'mysterious chronic fatigue' afterthought and they'll be great prey for the psychologisers - not only are all their tests...

So only two out of the 44 participants had a diagnosis of FND, but they all had FCD which is a subtype of FND? (according to the authors)

How interesting!

Thread on the preprint here. https://www.s4me.info/threads/long-covid-brain-fog-treatment-findings-from-a-pilot-randomized-controlled-trial-of-constraint-induced-cognitive-therapy-2024-uswatte-et-al.39224/ My comment there was: (edit to add: sorry for the unnecessary duplicate post, should...

:banghead:

At least they've stopped using that line about how 'at worst', ME/CFS can make people 'feel' they aren't getting proper care. Perhaps someone's explained how insulting it was.

I'd bet money that the phrase "As a large language model" appears somewhere in there.

That was my reaction too, as an autistic person and the parent of an autistic child.

(Incidentally I first read the study title as "Inventing Associations Between Central Sensitivity Syndromes and the Autism Spectrum", which sounds about right.)

Something that is frequently talked about by autistic people is 'sensory seeking', ie being undersensitive to stimuli (compared to other people), hence some physical repetitive behaviours or 'stimming' (repetitive movements or fiddling) to provide a consistency of sensory feedback. I've no idea...

Couple of things from a quick skim of the PDF: That suggests their participants were on the milder end of LC, because those with more severe symptoms would have been more likely to already be on a GP or specialist care pathway and so ineligible for the study?

In the rubber hand illusion, as in other illusions, the illusory sensation is almost immediately extinguished as the brain corrects its momentary error. The initial conditioning doesn't cause the participant to go on believing that the rubber hand is their own. You could just as well argue that...

Higher doses have some nasty side effects, which would be problematic both in terms of wanting to avoid harming trial participants and also possibly creating confusion in the data.

GPs and other HCPs often seem to have enough trouble understanding the facts of what life is like for pwLC and ME, without becoming confused with yet another 'it's a bit like this except not really' condition.

A member suggested that people think the person in pain is performing or amplifying the discomfort by fixating on it and conversely, if you can grit your teeth and hide the fact you're in pain, that obviously means the pain isn't that bad. There's no "correct" way to give an external idea of...

Bookmarking this answer for the next time I try and talk to my GP about why my ferritin is low but other rbc results are OK!

I hadn't heard of Patricia Murray before. https://www.liverpool.ac.uk/people/patricia-murray Interested to see that she began her career as a nurse. Perhaps this helped her to see medical claims in terms of their impact on patients rather than on the researchers' careers.

Saw this in a Mastodon thread today about the World Conference on Research Integrity. https://mastodon.online/@tomstafford/114301415246307147

Researchers missed a trick not including healthy controls. If caffeine also improves the walk distance, perceived fatigue and so on of control participants, then they've found a treatment that can support healthy people being rehabilitated from, um, healthiness.