Search results

  1. E

    JK Rowling new book — chronic illness references

    'Spoonie' as in 'spoon theory' (metaphor for fluctuating energy-limitations) https://en.wikipedia.org/wiki/Spoon_theory There's plenty of fellow-feeling and overlap between disability communities and trans communities online (both having experience of being socially marginalised and having to...
  2. E

    JK Rowling new book — chronic illness references

    A writing process where just a few main characters are three-dimensional humans and the rest are cartoon comic figures or monsters can work nicely in children's fiction but doesn't really transfer to the adult world, at least not if you want to feel that you're tackling Deep and Important Social...
  3. E

    UK: Long COVID SOS News

    Some of it's not bad but it's peppered with over-confident and under-evidenced statements. e.g. that "activity can safely be increased" once you've had several weeks or months of pacing without crashes. Also I wish the factoid about Long Covid having "200 symptoms" would go away. I think it...
  4. E

    Earseeds, Acuseeds

    This is one of the top stories on the BBC News website just now: https://www.bbc.co.uk/news/articles/c4gpz163vg2o Steven Bartlett sharing harmful health misinformation in Diary of CEO podcast
  5. E

    Review Defining and measuring long COVID fatigue: a scoping review 2024 Thomas et al

    At least it wasn't AI-generated; ChatGPT would have put a random number in rather than a placeholder.
  6. E

    United Kingdom: ME Association governance issues

    - and if not now, when? The time has never been so ripe to achieve some change, with awareness at such a (relative) high, and a current momentum of media attention that will not last forever. But they're still going "Careful, don't frighten the horses" when the horses are already all running...
  7. E

    The impact of sex differences on perceived pain intensity in pain protocol standardization, 2024, Wragan et al

    Saw it on Mastodon https://biologists.social/@biorxiv_neursci/113628238034821270 and it sparked half a memory of someone commenting on here about the need to take sex into account in studies (sorry, can't remember who that was). Happy for the thread to be deleted if you think it's not worth...
  8. E

    The impact of sex differences on perceived pain intensity in pain protocol standardization, 2024, Wragan et al

    Preprint Abstract Background: Sex differences have been widely demonstrated in both acute and chronic pain. Sex differences may have wider impact on research design and analysis than already established. This study addresses an important methodological aspect with regards to how sex differences...
  9. E

    A description of the development of an innovative multi-component [LC] treatment program based on central sensitization, 2024, Munipalli+

    Also, In other words, more than 80% of patients showed no sign of pain catastrophizing, despite having a serious disabling illness. But they're being told their problems are due to 'maladaptive cognition' anyway.
  10. E

    A description of the development of an innovative multi-component [LC] treatment program based on central sensitization, 2024, Munipalli+

    We should be grateful that at least their grab-bag of 'strategies' doesn't include 'go stick your head in a pig'.
  11. E

    Preprint Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations..., 2024, Aitken+

    Garner's understanding of classical conditioning seems to be that the dog's salivating causes the food to arrive.
  12. E

    Preprint Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations..., 2024, Aitken+

    My Fitbit also gave me scarily low HRV readings, so I looked on their community forums and saw lots of other people saying theirs were also giving scarily low readings compared to what their other devices were telling them. I think it's just a fitbit 'thing' and probably the key is to look at...
  13. E

    Doxophylline, a Non-Selective Phosphodiesterase Inhibitor, Protects Against Chronic Fatigue-Induced Neurobehavioral,... 2024 Kumar et al

    At least they didn't give the mice questionnaires afterwards to see if the swimming exercise produced improvements on self-reported fatigue scores.
  14. E

    Doxophylline, a Non-Selective Phosphodiesterase Inhibitor, Protects Against Chronic Fatigue-Induced Neurobehavioral,... 2024 Kumar et al

    "a state of CFS in mice was induced by forcing them to swim daily for 6 min for 15 days" distressing and pointless
  15. E

    COFFI - The international collaborative on fatigue following infection

    Evolutionary adaptation is just something that happened to other people...
  16. E

    Do you get breathless with exertion?

    Yes (ME triggered by Covid) - both physical and mental exertion leave me short of breath now. I'm not overweight, mid 40s and no other medical conditions.
  17. E

    Altered Neural Processing of Interoception in Patients With Functional Neurological Disorder: A Task-Based fMRI Study 2024 Sojka et al

    A finding of reduced neural activation during interoceptive tasks would seem to conflict with the hypothesis that FND patients are paying too much attention to interoceptive signals and becoming overly sensitised?
  18. E

    UK House of Lords/ House of Commons - relevant people and questions

    Somebody could usefully ask how many of those services are due to close in the next few months (as my local one is), or have already closed, because of denial of funding.
  19. E

    United Kingdom: ME Association governance issues

    nope, you don't get to sneer about people being oversensitive if they disagree with you and then turn round and preach that "we must all come together".
Back
Top Bottom