Search results

  1. E

    Could there be an on/off switch for ME/CFS and if there is, what would that tell us??

    Or even on a smaller scale; it seems quite a common experience that trying a new medication causes a small improvement and then the problems come back. OK, placebo effect, regression to the mean, etc etc. But it would also be consistent with a feedback loop being temporarily disrupted and then...
  2. E

    Poll: To what extent are you (PwME) still shielding from Covid?

    The last time I was indoors with people other than family, which was months ago, I planned to wear a mask and had it in my pocket, but forgot to put it on (my brain was at capacity trying to stay conscious and occasionally talk). And of course no one else was wearing one so there was nothing to...
  3. E

    "The evidence for pill colour impacting placebo effects gets flimsier the more you examine it"

    Looking at the evidence for one of the things that tends to get quoted as a proven fact in discussions of placebo effect: "The BMJ tries to walk a middle ground. The review acknowledges that the evidence is inconsistent while still suggesting that colour might influence the effectiveness of a...
  4. E

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I've been listening to this in little chunks. Both interviewees talk about "recovery" but they agree "you never completely recover - you just learn that you have to manage your energy". Before illness LP describes herself as always busy and defining herself by productivity/achievement. So when...
  5. E

    Enhancing exercise intervention for patients with post-acute COVID-19 syndrome using mobile health technology: The COVIDReApp R..., 2024, Duenas et al

    ChatGPT-generated, perhaps.
  6. E

    What research do you want to see? (study ideas)

    Sorry - had a brainfade there.
  7. E

    What research do you want to see? (study ideas)

    NHS England month-by-month data for July 2021 to Feb 24 is here. https://www.england.nhs.uk/statistics/statistical-work-areas/covid-19-post-covid-assessment-service/
  8. E

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Suggestions from the thread linked earlier, https://www.s4me.info/threads/alcohol-intolerance-and-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-maciuch-jason.33560/#post-549305
  9. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    Thanks!
  10. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    One study is discussed here - the study author joins the thread and comments on some of the possible mechanisms https://www.s4me.info/threads/alcohol-intolerance-and-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-maciuch-jason.33560/
  11. E

    Guardian: "Britain has closed its eyes to long Covid"

    Interesting that there are over 300 comments on this and almost none claiming LC is fake or 'just mental health'. A couple of comments have been removed by mods, but a year or two ago half the thread would have been denialism and minimisation. I do think public perception is changing. (edit to...
  12. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    Is he still on Twitter? Maybe someone could send him some tempting links to threads for paper discussions...
  13. E

    Insights from triggers and prodromal symptoms on how migraine attacks start: The threshold hypothesis, 2024, Sebastianelli et al

    I've never been able to identify any triggers for mine (they aren't frequent). Wish I knew!
  14. E

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The more you look at this paper the weirder it gets.
  15. E

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Maybe it's the kind of plastic they use to make scuba masks.
  16. E

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I got the Loop Link for mine, so they're hanging around my neck when not in my ears, and it massively reduces the faff of constantly dropping/picking up/cleaning/losing them.
  17. E

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Claiming to have been threatened and 'silenced' might also have the effect of discouraging other researchers from going into the field and coming up with data which could make them look very silly (and dishonest).
  18. E

    MRC-funded grant proposals on ME/CFS by year, 2003–2023, along with the total number of proposals received that year.

    And on the other hand there are people like Danny Altmann who has said on many occasions that they have studies ready to go but can't get any interest from funders - e.g.
  19. E

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    And the brainwork of multitasking any combinations of physical & mental effort is another exertion in itself. Eating a meal while talking to someone isn't two kinds of exertion, it's three.
  20. E

    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    Before I got ill, car travel always used to make me sleepy - a pleasant sensation as long as I wasn't the driver. Now it makes me tired-but-wired - the opposite of sleepy. Also dizzy, wobbly, verbally incoherent and with the sensation of continuing to move for hours afterwards. (edited to add...
Back
Top Bottom