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    United Kingdom: The Royal Society of Medicine

    Royal Society of Medicine livestreamed event on 11 July. 'Organised by Rheumatology and Rehabilitation' https://www.rsm.ac.uk/events/rheumatology-and-rehabilitation/2024-25/rrt52/
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    Update from the Windsor Castle Research Event (Action For ME)

    Maybe not any more. From the minutes of the APPG on ME and Long Covid last month: https://appgme.co.uk/meetings/minutes-for-appg-meeting-14-may/
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    This is where the faked-up data about sickness benefits enabling long-term sickness comes in, so that cuts can then be presented as "compassion", as "saving" people from being "cast on the scrapheap" and "trapped" in a life of dependency.
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    Improvement of Fatigue and Body Composition in Women with Long COVID After Non-Aerobic Therapeutic Exercise Program, 2025, Miana et al.

    FWIW I've just asked a relative of mine who is a professional circus acrobat, her core muscles are steel. Answer: "we'd never do that many situps, they're not really optimal for abs".
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Considering that it follows on from a pandemic, it's positively modest.
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    Exploration of Intersections and Divergences of Long COVID and Chronic Fatigue Syndrome, 2025, Kouyoumdjian et al

    Table 2 shows 29.7% of the control group experiencing "PEM". :emoji_shrug:
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    Exploration of Intersections and Divergences of Long COVID and Chronic Fatigue Syndrome, 2025, Kouyoumdjian et al

    Tiny numbers, and the non-covid controls were also "randomly selected" patients at the teaching hospital but I can't see if the paper includes details on what their health conditions were.
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.theguardian.com/society/2025/jun/24/keir-starmer-disability-benefit-reforms-rebellion-by-mps As usual, the journalist does not provide the basic factual context that PIP is not an out-of-work benefit.
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    Travel grants for researchers

    Just in case this is useful to anyone! https://www.biologists.com/grants/travelling-fellowships/
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    Neurodevelopment Genes Encoding Olduvai Domains Link Myalgic Encephalomyelitis to Neuropsychiatric Disorders, 2025, Lidbury et al

    As with autism being found to have genetic links both with intellectual disability and with higher ability. it probably says more about who gets diagnosed.
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Line that jumped out at me on skimming the minutes: Danny Altmann "highlighted that there has been no Long Covid research funding of any significance from the NIHR since 2021."
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    Alternative to duvet for summer months

    I use a duvet cover with no duvet in it!
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    Agomelatine but not melatonin improves fatigue perception: A longitudinal proof-of-concept study, Pardini et al, 2014

    Reduced perception of fatigue is a real double-edged sword if it causes you to go beyond your limits. Even if it's just by a little bit each day, because you feel you're a bit brighter for whatever reason, culminating in a crash. I'd guess a lot of us have been down that dead end at times.
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    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    It would be nice to think that many of the 266 who chose not to attend did so because they know it would be bullshit.
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    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    and "ask your GP" is such a pointless thing to be told by an app when anyone using the app will already have seen their GP. And so patients go round and round in the system on the promise that someone somewhere will have "specialist support" for them (while HCPs complain about patients seeking...
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    News from Aotearoa/New Zealand and the Pacific Islands

    If they're going to start promoting brain retraining, are they going to do the same for all the other unevidenced treatments backed by enthusiastic anecdotes? Why would you lower your standards for one but not others?
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    Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care, 2025, Cupit

    Four of the authors are also authors of this study, which found CBT had no effect on whether people developed chronic pain, but the authors claimed efficacy and success anyway...
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