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  1. forestglip

    What Doesn't Kill You [Forthcoming Documentary]

    Oh, the title was one of my favorite parts because I thought it was being said ironically. Like I think that is an amazing title if the implied end is "sometimes only destroys your life little by little, takes everything from you, and maybe then kills you eventually anyway." I imagine it being a...
  2. forestglip

    Profiles of Individuals With Long COVID Reporting Persistent Cognitive Complaints, 2025, Fernandez et al

    Profiles of Individuals With Long COVID Reporting Persistent Cognitive Complaints Carmen Cabello Fernandez, Vincent Didone, Hichem Slama, Gilles Dupuis, Patrick Fery, Gaël Delrue, Alexia Lesoinne, Fabienne Collette, Sylvie Willems [Line breaks added] Objective A subset of COVID-19 patients...
  3. forestglip

    Patient-Reported Treatment Outcomes in ME/CFS and Long COVID, 2024, Eckey, Davis, Xiao+

    Health Rising: 'TREATME: the Open Medicine Foundation’s Mammoth ME/CFS and Long COVID Treatment Survey Results'
  4. forestglip

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    Some of the message might be getting lost in the translation, but this part seems to say they were the ones that misinterpreted the NICE guidelines, not that their paper was misinterpreted. So pretty close to "we were wrong": Though this from the last paragraph seems to be written the other...
  5. forestglip

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    I'm surprised their response is actually "we were wrong". Not something I come across often in authors' replies. Edit: To clarify, they didn't actually say the words "we were wrong", but it sums up their response.
  6. forestglip

    Trial Report Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with [ME/CFS]: a case series, 2025, Sjogren et al

    Link to publication here ****************************** Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a caseseries Per Sjogren, Helena Huhmar, Bo Christer Bertilson, Björn A Bragée, Olli Polo...
  7. forestglip

    What Doesn't Kill You [Forthcoming Documentary]

    I agree. From the trailer, it looks like a talented film-maker as well. This quote hit me like a train: Edit: fixed typo
  8. forestglip

    What Doesn't Kill You [Forthcoming Documentary]

    What Doesn't Kill You Lives in the grip of ME/CFS ✓ Coming in 2025 ✓ 100% of profit reinvested in ME/CFS research and education "What Doesn't Kill You" is a forthcoming documentary exploring the lives of people battling ME/CFS, a scandalously underfunded and chronically ignored disease...
  9. forestglip

    Trial Report Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al

    While IgG4 did go down more in responders, that's probably because it was four times higher at baseline in responders than non-responders. So maybe high baseline IgG4, like high NK cells, might be an indicator of who will respond. Table 2:
  10. forestglip

    Learning about the immune system

    I read this and it was really helpful. I started Janeway's after, and that first book made it much easier and less intimidating to digest Janeway's. Though I paused Janeway's after they started talking about biochemistry concepts I had no clue about, so now I'm taking a detour on more basic bio...
  11. forestglip

    Multifaceted evolution focused on maximal exploitation of domain knowledge for the consensus inference of Gene Regulatory Networks, 2025,Segura-Ortiz+

    Multifaceted evolution focused on maximal exploitation of domain knowledge for the consensus inference of Gene Regulatory Networks Adrián Segura-Ortiz, Karen Giménez-Orenga, José García-Nieto, Elisa Oltra, José F. Aldana-Montes [Line breaks added] Highlights • BIO-INSIGHT optimizes GRN...
  12. forestglip

    Affective and chronic fatigue symptoms are associated with serum neuronal damage markers in Parkinson’s disease, 2025, Al-Hakeim et al

    Affective and chronic fatigue symptoms are associated with serum neuronal damage markers in Parkinson’s disease Hussein Kadhem Al-Hakeim, Hayder Naji Khudhair, Sayed-Omid Ranaei-Siadat, Fataneh Fatemi, Fateme Mirzajani , Mengqi Niu & Michael Maes [Line breaks added] Abstract Parkinson’s...
  13. forestglip

    Comparing DNA Methylation Landscapes in Peripheral Blood from [ME/CFS] and Long COVID Patients, 2025, Peppercorn et al

    I put the results section from the preprint and the final paper in a diff checker (left hand side is preprint): https://www.diffchecker.com/lt6Xaxmg/ They didn't add anything there that makes it clearer that the chart is basically meaningless.
  14. forestglip

    Does anyone else get a runny nose, sneezing, coughing etc during PEM?

    Probably, but I can only definitely say that's the case (really bad PEM plus sore throat and runny nose) for the time it happened a few days ago. I didn't think to track it in detail previously.
  15. forestglip

    Does anyone else get a runny nose, sneezing, coughing etc during PEM?

    Only when I really overdid it, but yes, sore throat and runny nose.
  16. forestglip

    Closed 2022 Pilot study in Norway - Daratumumab in ME/CFS

    Thread for discussion of paper: Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al
  17. forestglip

    SMPDL3B a novel biomarker and therapeutic target in myalgic encephalomyelitis, 2025, Moreau, Fluge, Mella et al

    Alain Moreau responded to an email: Corrected legend: Edit: Note that I think he meant Supplementary Table S3. It has most of the items from the original legend, but not all, though.
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