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  1. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    A particularly moronic example of this madness is that all mentions of 'Enola Gay' are being removed from the entire defence department, because it contains the word 'gay'. Enola Gay is the name of one of the most famous and historically important aircraft in history – the WW2 American bomber...
  2. Sean

    Review Within person predictors of physical activity & fatigue in long Covid: Findings from an ecological momentary assessment study, 2025, Burton

    In fairness, that is a pretty big concession to reality, certainly by the standards of the psycho-behavioural club. It more or less undermines the rationale for the psychosomatic interpretation. I mean, they are very very late to the party, and we could have told them that for free, and have...
  3. Sean

    Unutmaz post about AI model use for MECFS

    I think those hyperventilating about how powerful and amazing AI is going to be, and soon, are likely to be quite disappointed. More likely is that it will run into a major barrier/s to progress, if it has not already. I seriously doubt that we are going to see truly sentient AI any time soon...
  4. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    disabilities disability They are trying to write us out of existence.
  5. Sean

    The impact of photovoice on the report of emotions in individuals with persistent physical symptoms: Results of an experimental trial 2025 Weise et al

    Yes, it is, um, interesting how the most powerful possible immediate practical help that medicine could recommend – improved material support – is the very one they rarely even mention, let alone test robustly. Instead that factor is twisted into a causally untested, correlation based claim...
  6. Sean

    News from the USA, United States of America

    "...Stone says, Long COVID patients just don't have the luxury to sit this out over the next four years..." Early days yet. Wait until you hit four decades with no useful advance in understanding or treatment.
  7. Sean

    Language Matters: What Not to Say to Patients with Long COVID, ME/CFS, and Other Complex Chronic Disorders, 2025, Nancy J. Smyth et al

    Patients are likely to enter these relationships having already encountered multiple obstacles to obtaining effective and compassionate medical care, including dismissal, denial, misdiagnosis with psychiatric disorders, personalized biases, and medical neglect [5]. It is serious abuse of power...
  8. Sean

    “I still can’t forget those words”:mixed methods study of persisting impact [of] psychosomatic and psychiatric misdiagnoses, 2025, Sloan+

    Exactly. After the extraordinary ongoing effort in trying to figure out how to better misrepresent sell their 'explanations and treatments' to patients, nobody in the profession can claim any ignorance of how patients really feel about having this pseudo-scientific garbage foisted upon them in...
  9. Sean

    News from PrecisionLife Ltd.

    We found 14 novel genes in ME/CFS and 73 in long COVID, many of which we also found in separate patient populations including the UK DecodeME and the US All of Us cohorts. Interesting. At first glance it seems to suggest considerable difference between LC and ME/CFS. But I wonder what will...
  10. Sean

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    BACME have made it crystal clear over the years that they do not represent me or my interests as a patient in any useful legitimate way. The 'reforms' they have made are empty performative gestures designed to do nothing but cover up their appalling track record, in order to continue on imposing...
  11. Sean

    Welfare benefit utilization for people with functional somatic disorder. A population-based cohort study 2025 Weinreich Petersen, Fink, et al

    Note the way they frame it. They do not quite explicitly say that they can never be explained by physical or mental factors, and do not explore the implications of that. Instead they say that they are "not attributable to other physical or mental conditions". But nobody said they were. It is a...
  12. Sean

    Cerebellar microstructural abnormalities in patients with somatic symptom disorders 2025 Du et al

    The findings suggest greater neurite density and enhanced diffusion restriction in the cerebellum of patients with SSD, which may indicate possible adaptive changes associated with chronic stress. Or, the (structural) may indicate the putative "chronic stress" causal component of the SSD...
  13. Sean

    Language Matters: What Not to Say to Patients with Long COVID, ME/CFS, and Other Complex Chronic Disorders, 2025, Nancy J. Smyth et al

    Exactly. Understanding and accepting reality is best place to start making the most of your situation, and change it where possible. Sooner is better.
  14. Sean

    UK House of Lords/ House of Commons - relevant people and questions

    It is a deliberate downplaying of and attempt to avoid facing up to the brutal reality, including the roles of governments, in bringing about the situation.
  15. Sean

    Persistent Symptoms (Lasting Longer than 1 Year) in Children Hospitalized with Acute COVID-19 Versus Other Conditions, 2024, Conde et al

    We identified a non-significant difference in the prevalence of persistent symptoms 1 year after hospitalization between children and young people (CYP) with acute COVID-19 and those hospitalized for non-COVID-19-related conditions. No, you failed to identify any significant difference.
  16. Sean

    Review Non-pharmacological treatment options for fatigue: A systematic review of RCTs in adults, 2025, Steen

    Several non-pharmacological treatment options for fatigue are promising. Have been for decades, and always will be.
  17. Sean

    Opinion Why inflammatory reductionism is a threat to psychiatry and the rest of medicine, 2024, Pollak

    Try the Go Fund Me first. I will be happy to throw in a few dollars. If that doesn't work out, then go behind the pay wall.
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