Search results

  1. Sean

    A Case Report of Headache and Weakness Diagnosed as Functional Neurological Disorder 2025 Wilson et al

    Two overarching findings observed in all FND subtypes include symptom variability and a grimacing expression while following the clinician’s instructions during the physical examination (2). WTF?!? Every time you think these idiots couldn't possible get any worse, there they go and prove you...
  2. Sean

    MRC/NIHR DecodeME Showcase meeting online and in person Nov 6th

    I think SequenceME is the one we should be pushing for now.
  3. Sean

    Stigmatisation in medical encounters for patients with fibromyalgia: A focus group study, 2025, Treufeldt & Burton

    Burton writing about stigmatisation of these conditions is rich, given his track record of psycho-stigmatisation of these conditions.
  4. Sean

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    We did, the 2002 guidelines. But they are way out of date, and were not done by the NHMRC but by the Royal Australasian College of Physicians.
  5. Sean

    Education Research: Targeting Self-Described Knowledge Gaps to Improve Functional Neurologic Disorder Education Among Clinicians, 2025, Miller et al

    The shift away from terminologies such as “psychogenic” or “conversion” disorders underscores advances in how FND is conceptualized marketed.
  6. Sean

    Review Applicability and adaptation of cognitive behavior therapy for long COVID neuropsychiatric symptoms: a review with insights from ME/CFS 2025 Takamatsu

    Moderate-certainty evidence indicates CBT may reduce fatigue and improve cognitive function in long COVID. Those two things don't belong together. I wonder if that was forced on them by the reviewers/editors?
  7. Sean

    Symptom profiles in long COVID compared to functional somatic disorder and the general population 2025 Agergaard, Fink et al

    Any discussion of the possibility that the FSD label/concept is invalid, irrelevant, and highly counterproductive?
  8. Sean

    Efficacy of behavioural therapies for irritable bowel syndrome: a systematic review and network meta-analysis 2025 Ford et al

    Several behavioural therapies are efficacious for global symptoms in IBS, although the most evidence exists for those classed as brain–gut behaviour therapies. However, certainty in the evidence for all direct and indirect comparisons across the network were rated as either low or very low...
  9. Sean

    Crowdfunding for David Tuller during October 2025

    $13,567 :thumbup:
  10. Sean

    Pacing with a heart rate monitor for people with [ME/CFS] and [LC]: a feasibility study, 2025, Clague-Baker, Davenport, Bull et al.

    This. I have yet to see any evidence for the value in using a single monitoring measure. But there might be a case, at least at the research level, for using a suite of them. Basically anything that can be monitored in real time, real life situations, for an extended time, at least 1-2 days...
  11. Sean

    Systematic review: digital biomarkers of fatigue in chronic diseases, 2025, Aboagye

    for patients with chronic diseases, simply encouraging increased physical activity may not be sufficient if prolonged sedentary behavior is left unaddressed. Interventions that break up sedentary time, such as promoting LPA throughout the day, could be more effective in reducing fatigue, likely...
  12. Sean

    Systematic review: digital biomarkers of fatigue in chronic diseases, 2025, Aboagye

    ...to inform personalized fatigue management. The results suggest that reduced physical activity, increased sedentary behavior and autonomic dysfunction are associated with fatigue levels across multiple disease conditions included in this review, though the strength of this association and...
  13. Sean

    Tired minds, normal scores: rethinking cognitive fatigue in multiple sclerosis, 2025, Davide Spinetti et al

    Exactly. They have to be relevant (and correctly interpreted). No point in measuring somebody's height in order to determine their red blood cell count.
  14. Sean

    General thread on functional disorders in Sweden

    Avoid: We don’t really know. Cowards. And they have they nerve to regard us as pathetic fragile snowflakes.
  15. Sean

    Crowdfunding for David Tuller during October 2025

    First of three done. :thumbup:
  16. Sean

    Pacing - different meanings of the term pacing in ME/CFS and other conditions, and the problems this causes.

    That explains a lot. Contradicted even by the actual evidence.
  17. Sean

    Well-known, famous people with ME/CFS (public thread)

    More than 40 years for me – my entire adulthood – and I still struggle with it every day, especially as I am now too old to have any real chance of a half decent life, even if a perfect cure became available tomorrow. There is just no way back from such an extreme degree of loss, abuse, and...
  18. Sean

    Disabled speaker barred from university debate on assisted suicide

    Or just carried them and their wheelchair up the stairs.
  19. Sean

    Post Covid-19 Condition as a Diagnosis: A Qualitative Study on Epistemological Tensions Among Experts in Sweden, 2025, Bredström and Jämterud

    Agree, though worth adding that not all bias is against minorities. Women are not the minority of the population.
  20. Sean

    Covid-19 vaccines and vaccinations

    Still recommended and free for all here in Australia, though not compulsory. I just had a booster on Monday, and it has knocked me about a bit. Nothing too serious, but I have had better weeks. :ill:
Back
Top Bottom