Search results

  1. Sean

    Criticisms of DecodeME in the media - and responses to the criticisms

    That is exactly what they are doing, and have been for some time. The rest of medicine, and the broader governance structure, need to wake the hell up to it and stop them.
  2. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    A core problem in subjective assessment that was known and understood decades ago, indeed millennia ago. Yet here we are, with the very profession who is supposed to be responsible for understanding this methodological issue and making sure it is taken into account in research and clinical...
  3. Sean

    Criticisms of DecodeME in the media - and responses to the criticisms

    We also know that recovery is possible, They know no such thing. They merely assert it. Yup. That is exactly what they will do, indeed are already doing via FND, rather successfully thus far unfortunately. And they will keep right on trying to foist this garbage onto sick vulnerable innocent...
  4. Sean

    News from the USA, United States of America

    Good result. But the 'restored' pages will need some close scrutiny to make sure they have not been altered.
  5. Sean

    Is ME/CFS a form of Host versus Host disease?

    I get tender, firm, and somewhat swollen glands, almost entirely the neck ones. Has always been a feature for me.
  6. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    I would be amazed if they didn't.
  7. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Read this over a few times now and it is actually quite realistic and helpful. A bit anemic maybe here and there, but overall nothing I would seriously disagree with. Symptom list is good. This paragraph is excellent and important, particularly the last sentence: Try to manage your activity...
  8. Sean

    News from the USA, United States of America

    'It also renews attention to post-viral illnesses such as ME/CFS,...' I really wish the viral part of that description was dropped from the lexicon. We don't know it is viral. Much safer to say post-infection. 'Personalized treatment, tailored to individual symptoms and immune markers will be...
  9. Sean

    News from the USA, United States of America

    How, given recent events, is this anything less than a cruel bald-faced lie?
  10. Sean

    Trial By Error: A (Satirical) Field Guide to Conducting Biopsychosocial Research in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2025

    Very amusing, in a grim kind of way, and like all good satire also an accurate critique of the situation. (n = too many) :laugh:
  11. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    There was a short article by a patient I read many years ago describing the endlessly contradictory suggestions and advice they received from all directions, personal and professional, about what was wrong with them and how they should deal with it. I thought I had a copy but can't find it now...
  12. Sean

    News from the USA, United States of America

    To the surprise of nobody with more than a dozen neurons. We are watching the complete destruction of medical science, and no doubt other sciences too, in the USA, and quickly.
  13. Sean

    Tom Kindlon - ME/CFS Advocate

    :thumbup: :hug: :party:
  14. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This is nuts. Yep. Nothing fundamental has changed. Just the marketing. They are doing exactly what they have always done. This. It is one of the most potent and frequently employed tactics from the BPS – shamelessly making the same claims again and again, flooding the journals, clinical...
  15. Sean

    DecodeME in the media

    Grifters gonna grift.
  16. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    ...significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme. That claim that needs very robust scrutiny indeed. Evidence, please, and it had better be good. And...
  17. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    While it remains predicated on the rehab notion of' establishing a baseline' it will fail. If they started with the concept of a ceiling, and how to avoid running into it, they might get further.
  18. Sean

    How would a deficit in processing of physiological signals lead to ME/CFS?

    DecodeME results aside, I agree that almost everything we see or know about ME/CFS, especially clinical presentations, is the downstream consequences.
Back
Top Bottom