Search results

There are some on X speculating that it might be Amifampridine, a potassium channel blocker.

I think we'd just be guessing at trying to make sense of this drug identifier. There are so many different possibilities, including that the identifier doesn't really mean much at all.

I'm wondering if this is not more likely to be some sort of supplement formulation, given Dr Godlewska was doing work on creatine (I think).

I think Lindus Health is just running the trial — the 'CRO'. They aren't a pharmaceutical company. They seem like a healthcare startup for doing clinical trials. The trial sponsor seems to be Alfred E. Tiefenbacher GmbH.

Seems to be related to work of Dr Beata Godlewska at Oxford, discussed here: https://s4me.info/threads/university-of-oxford-cfs-study-researching-the-biochemistry-of-chronic-fatigue-syndrome-closes-30th-dec-2022.23609/#post-394994

Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) affects around 1% of the population, bringing significant challenges to daily life. There is an urgent need for new, effective treatments to improve the quality of life for those affected. If you've been living with ME/CFS symptoms for...

I have commented below this post about how this is likely an overestimation. Not to mention that this prevalence figure is based on people infected with COVID, not the general population.

Do SFN patients feel really unwell. Like, really unwell ME-unwell? Physical *and cognitive* exhaustion? Immune (flu-like) symptoms, sore throat, tender lymph nodes, worse in PEM/crashes..? From what I've read that's not the case, although there is of course significant symptom overlap. I guess...

It should be easy enough. You submit a SAR and the form should include an option to get all imagery. If not then add that request yourself. The hardest part is dealing with the file formats and reading the imagery files, because different trusts use different packages and you'll need to install...

I think this is no different to internal tremor/vibrations. When milder, I used to get them when I'd overdone it. I could feel it in my upper trunk. Now, with onset of OI/PoTS, this symptom is much more common for me and I feel it most in my left hip and left leg.

I think these studies are often done just so someone can get a publication. They add nothing, usually. Always the same story: the studies weren't good enough to say anything of value.

Excuse my ignorance, but is this basically a private contract, or can different hospitals 'bid'?

Yes, that seems to fit. Thanks.

Anyone know who the bald-headed, possibly South African(?) psychologist is at 31:30? Says he was part of some group involved with the 2007 NICE guideline.

I'm not sure if it's exactly this part, but someone in the audience talks about how people with 'CFS' have [something] personalities. I can't hear what he says. Did you catch it?

7th National Neuropsychiatry Conference "Chronic Fatigue Syndrome (CFS) has long been recognised, and many different names and diagnostic criteria have been used to describe it. It remains an illness of uncertain cause. While fatigue is a very common presenting complaint in many settings...

Does anyone have a glass water bottle that they use to keep fluids up during the day? I want to get rid of my plastic Sistema one. Would prefer one with a flip lid, and also perhaps level markers on the side. Lots on Amazon, but you never quite know what you're buying on there. TIA.

Famously, no one has ever done that before.

There's nothing in the article to suggest the test can discriminate LC from healthy controls, because everyone who has had SARS-Cov-2 will have antibodies, right? I'm not quite sure what they are trying to do.

"Attomarker said of those tested 60% showed a poor quantity and quality of antibodies in response to the Covid variant encountered, which can be treated via immunotherapies and vaccines. "There was a hyper immune response to the infection for 15% of those tested, which means their bodies...