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  1. InitialConditions

    ‘Oh my God’: live worm found in Australian woman’s brain in world-first discovery

    The stuff of nightmares. Thought I'd probably take a brain worm over this M.E hell.
  2. InitialConditions

    Miguel Bautista’s CFS Recovery ‘recovery jumpstart’

    He was a guest on some grifter YouTube channel or podcast recently, where he's saying he wants to 'make a million'.
  3. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    Thanks, may try this. Some people say just covering the verruca (e.g., with duct tape) can help, so maybe the combination of a plaster with salicyclic acid might work.
  4. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    I think they got rid of verruca treatment as standard in the NHS. Might vary by trust, but it's definitely not like it used to be. I had a wart frozen when I was at school.
  5. InitialConditions

    Has anyone else here struggled with a persistent verruca?

    I've had one for the best part of a decade. At various times I've tried to treat it, mostly with over-the-counter gels such as bazuka. In Feb–March I had several sessions with a podiatrist, including 2 x debridlement and one quick session with a 'verruca pen' which seemed to be some sort of...
  6. InitialConditions

    Michael Maes M.D., Ph.D. Professor, researcher

    His work on ME/CFS has come up on the forum a few times. I have stated here before that I get bad vibes from his work, but I wasn't aware that he was publishing dozens of papers a month, which, as anyone in academia will tell you, is ludicrous.
  7. InitialConditions

    UK Government ME/CFS Delivery Plan consultation

    Precisely this. We need to build a whole network of researchers / give them some sort of incentives/support to switch to this line of research. Perhaps an MRC centre of excellence for infection-associated chronic illness? That's the scale of what is needed.
  8. InitialConditions

    UK Government ME/CFS Delivery Plan consultation

    I'm in quite a bad crash at the moment, and I'm going to have to reduce screentime and stop most of my advocacy work for a while. I might not be able submit my own comments unless this crash subsides. I just want to add two points for now (that others may have already made): (i) EDUCATION AND...
  9. InitialConditions

    UK Government ME/CFS Delivery Plan consultation

    Yes, was wondering this. There are two potential issues/considerations: (i) is it better to have 50 responses saying roughly the same things compared with just one, and (ii) the response form looks like it might assume responses are from individuals.
  10. InitialConditions

    UK Government ME/CFS Delivery Plan consultation

    Is there really no PDF? EDIT: Ok, I can print to PDF, but strange to have no direct download link.
  11. InitialConditions

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    The 'doctor' guy is a chiropractor who also does holistic therapies: https://atlashealthmethod.com/about-us/
  12. InitialConditions

    $500 000 Gift to OMF - Chris Armstrong

    It says treatment plan, which is probably a mix of all sorts of medications/supplements/health + diet advice, similar to what they've always done at the Stanford Clinic.
  13. InitialConditions

    $500 000 Gift to OMF - Chris Armstrong

    Philanthropic spiel and American enthusiasm is a deadly combination for our language.
  14. InitialConditions

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    There was only one published, I believe. I suspect there was something going on behind the scenes RE MEAction response, possibly involving the paper's authors, and they curbed publishing responses. But the other responses should now be published.
  15. InitialConditions

    Question about inflammation markers - ESR and CRP, and a general question about test results

    Not medical advice, of course. Just how I see it, and how I think doctors see it. @Jonathan Edwards might be able to help.
  16. InitialConditions

    Question about inflammation markers - ESR and CRP, and a general question about test results

    My experience with blood tests is that being slightly out of range is generally not (considered) significant and doctors are really looking for large departures from the reference range. They won't care about 5–10% out, but they will if you're 30, 40, 50% out.
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