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https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/ ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services. "The ME Association is very pleased to announce...

Yes, thought it might be a typo, but forgot about ICC.

This looks like a reasonably good paper from first glance, with results as expected. "Patients were included if their reported symptoms fit the criteria of any of the three case-definitions (CCC, ICM or IOM)." Not sure what ICM is?

@Adrian is it possible to bring this up with MERC/CMRC - perhaps an email can go round to the existing distribution list? (I know MERC is not currently active).

I just don't think they are getting the proposals. A half decent proposal on one of the PSP priorities probably has a good chance of being funded now. Who/where are these proposals going to come from?

If I'm not mistaken, this call has been open since 2003 (as Andy has noted), so the ME Association tweet is wrong to suggest applications have just opened on 1 May 2023.

You could close Garner's Twitter account!

Wonder where the full paper is, given this is just the abstract. Perhaps it's not out yet.

I tweeted about this, in reply to a Long Covid Kids Scotland tweet. I'm annoyed that so much history is being erased. You only have to read the article to understand that these two kids (and possibly the adult) almost certainly have ME. Not mentioned once, of course.

Ok, thanks. So she is involved with the proposed biobank.

People are debating who this person is, but I can't actually see what the proposed/funded projects are (unless I've missed them). What has Rosmalen been funded to *do*?

Have details about the funded projects not yet been released? Because I can't see them.

That's good. I will post on the open respository and if they're not published I will send to that email address.

I'm putting together a few comments on the paper. I will submit to the journal but they prefer comments to come from people with an affiliation, so they may not publish. But I noted the CMRC/MERC + its PAG are not thanked in the Acknowledgements. They should be. Stephen did a lot behind the...

@Andy Can you say where this is submitted, or not? I do hope you're going for a leading / high-impact journal.

This is a good assessment of the BPS model, but it also reveals why critiques of it have to be properly thought out—otherwise you'll be denying something that probably is true to some degree.

I'm not familiar with this: τPCr-measure of mitochondrial respiration Has this been used in ME/CFS research?

I would be very surprised if a blend of amino acids does anything significant. Only significant result is based on subjective outcome (Chalder Fatigue Scale), but of course this study is placebo-controlled. Some of these amino acids can be used to affect mood, so perhaps that is playing a role.

I think to get any relevant links, your question needs to be more precise. Are you interested in only ME/CFS research? Biomedical only, or all ME/CFS research? In the UK, or worldwide? Still, I don't quite understand your question. It seems what you want is a list of research proposals that...

I'm a little dissaspointed by the numbers. It seems we're likely stuck around 10k for DNA samples, far shy of the 25k goal. IMO, it is important to patients because every extra patient adds power to the study. Personally, I would like to know what the project leaders and researchers think...