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Yes, I noticed the link had been removed. You could always contact the person whose webpage it is, as he is the author of the document.

So the EHRC could have swapped 'ME/CFS' for 'long covid' in their tweet and it would reflect the status quo for ME/CFS...

I am wondering—because this is not an area that I have much expertise in—is ME/CFS classed as a disability in this context?

Although, again, the nature of the definition of long covid is an issue. For many, LC is not disabling, and they can work and live their lives as normal.

I don't think this article has been posted, but we have discussed earlier in this thread the EHRC tweet announcing this 'policy'. It is quite shocking, and must be fought. I have submitted a FOI request to EHRC request to ascertain whether this is now their policy and how they came to this...

I can raise this within FME. We are working on trying to improve NHS ME/CFS services' websites, and obviously this main NHS page is important.

This is just a copy of an article in local news, last week. I knew I had read it before. https://www.gazetteandherald.co.uk/news/20110501.saskia-james-immensely-proud-working/ I'm surprised BBC does that.

This is essentially the NICE long covid definition/criterion. My neighbour had covid a few months ago, and still has a cough that hasn't resolved. She has long covid according to the NICE guidance, and this is why I'm so adamant that unless people stop conflating these cases with the ME/CFS-like...

It's probably an accurate reflection of what they offer. Note they are talking about their in-house service (https://www.actionforme.org.uk/get-support-now/our-healthcare-services/healthcare-services-for-me/), which I think is now managed by ex-ME Trust staff.

Try again in a week or so!

If it's meant to be open access, then that download link is broken.

The note about downloading the PDF is confusing. I don't think this is open access.

ScienceDaily piece: https://www.sciencedaily.com/releases/2022/05/220504110408.htm

It is mostly due to workload issues in the case of Nina, but there have been some disagreements. PAG (through Opal) rightly raised the issue that having a clinician involved in the NICE implementation work is vital given Nina's departure.

Presume it is risk of bias.

This thread is really useful, and I haven't come across it before. The 2019 thread is in the 'General ME/CFS news' forum. This thead is in the 'General ME/CFS discussion' forum (which is rather sparse). I would suggest the best location for both threads is in the 'ME/CFS research news' forum...

The APPG pages haven't been updated in a while and minutes are not routinely published there.

"APPG Report. Charles advised publication is due to be launched on May 25th at 1530 at Portcullis House, Westminster." I don't know anything about this.

Minutes from April Steering Group meeting: https://forward-me.co.uk/13th-april-2022/

https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.