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Once again, a totally meaningless study, because most of these patients will improve over time regardless of the intervention.

Yesterday I learned that sertraline affects endothelial function. The truth is that we really don't understand well how anti-depressants work, particularly SSRIs. They can have a strange array of effects. For example, fluvoxamine has possible anti-viral and anti-inflammatory effects and was used...

Thanks. Yes, there might be some material on that thread. I am interested in dicussion of their websites/materials/linked resources, rather than the services themselves.

There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the material on ME/CFS services' websites (and any literature they distribute to patients)? I'm sure we've...

Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...

I hope they were adequately compensated for their time. Perhaps in carrots.

If you mean in the research studies, I'm not sure. If you mean the patients followed in the doc, I'm also not sure, but there were four (I think), and two made good recoveries in time. They seemed to be moderately affected. Housebound etc.

If I re-watch, I will give a summary. But it's a few days now since I watched and I'm currently crashing.

This pre-dates the BPS school (as applied to ME/CFS). The psychs were saying no organic illness and basically blaming epidemic spread on hysteria or similar. Yes, there was biomedical research by Ramsey / Dowsett etc; in the film it shows a potential blood test to look at evidence of enterovirus...

I considered that but wondered if they degrade the video quality to keep file size down.

Cheers Adam. I was going to tag you to see if you had it!

If anyone is able to download from YouTube (for example, using YouTube Premium), please let me know. I'd like to save a copy of this.

Recently uploaded to YouTube. This was uploaded in 2021 by a different user, but was taken down shortly after due to copyright. "To be told 'your illness is all in the mind' or 'pull yourself together' is no help to people like Mollie Champion -14 years seeking a diagnosis and still not cured...

There's a sister set of articles (paper [Adamson] & response [Vink]) on CBT. https://s4me.info/threads/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs-outcomes-from-a-specialist-clinic-in-the-uk-2020-adamson-wessely-chalder.16242/page-8#post-346774

The Vink letter is here (and is itself a response to an article, I think...) https://www.tandfonline.com/doi/full/10.1080/09638288.2022.2048911

PS Can the title of this thread be updated to reflect the name change. Thanks. From the mods: done

British Association of Clinicians in ME/CFS (BACME) is developing 3 new Advisory Groups as part of its Patient and Public Involvement commitment.

@Jonathan Edwards are you involved with the NICE implementation plan going forward, or has your involvement finished? I am a little apprehensive that this is being done behind closed doors. I believe on the patient side this is being coordinated by Forward-ME and involves a service specification...

I wouldn't wan't the word 'malaise' anywhere near the name for the illness/disease.

One of my pet hates is academic studies where the abstract does not tell you the most important result/conclusion of the study.