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But these are healthy controls, so you'd expect small increases in HR and very few to none meeting PoTS criteria. Unless I am misinterpreting your post...?

This is Action For ME, one of the two main UK charities, not ME Action. I definitely feel more comfortable donating to AfME than the ME Association these days.

Not a bad idea really. I have purchased some raffle tickets.

I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/

This is also the case for me. I'm not exactly sure what it's sensing — increased heart rate or perhaps something else.

Japan never lets us down.

I have an Oura 3. The battery life has recently degraded, which is a known issue after 2+ years. I have read that they might replace it for free. Interested to see your HRV data.

I can't get archive.ph links to work these days. I'm not sure if the site is down here in the UK or whether it's something in my setup. I use 12ft.io to view these paywalled articles.

Closing tomorrow (Aus time). Can be completed in around 10 mins, apparently.

It's an estimate based on the numbers in England diagnosed with the ICD-10 code G93.3 (Postviral and related fatigue syndromes), which includes ME/CFS, based on analysis of hospital data (not GP records). The study hasn't attempted to disentangle the known problems with misapplication of...

I'm not aware of anything of use in Liverpool (worth traveling 300 miles for).

There seems to be some confusion about whether the 404,000 figure is for the UK or just England. I believe it's for the UK, so this article would need correcting.

Yes, it's good that they've decided to publically challenge funders on this.

There is the opportunity to support this proposal by signing an open letter hosted by Organise Network, here: https://organise.network/actions/petition-a-proposal-for-an-me-cfs-long-c-xWkB_pcn/saf/take-action?utm_source=share&utm_medium=clipboard&utm_campaign=505a358c-8a1d-48ff-b55c-847346df5fe9...

Additional documents: (i) Letter from ME researchers to funders (ii) Letter to MRC and NIHR leadership (iii) Strategic Research Funding - Parliamentary Briefing

https://psp-me.co.uk/campaign-strategic-approach-mecfs-research/ The proposal (attached) can be supported via the 'Support the campaign' button on the above linked page.

I don't think a band-aid stimulant is what we need.

The new PIP Daily Living 4-point rule would mean 87% of PIP recipients with standard Daily Living would lose their awards. The figure is 13% for those with enhanced Daily Living. Not to mention these people would likely also lose their UC LCWRA awards.

Form here: https://docs.google.com/forms/d/e/1FAIpQLSelDC00Dul6_PiiBEZrAPHgG0HFdp8x9YtpBw9LwFGmIOkhJQ/viewform

"This is your chance to make your voice heard! NHS Greater Manchester is designing a brand-new integrated service for people with ME/CFS and Long Covid and they want to hear directly from you. This is a real opportunity to influence how care is provided across Greater Manchester - from diagnosis...