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If the authors are reading this, thank you for your understanding that much of Long Covid is probably ME/CFS, and that trying to return people with the condition back to work before they are well isn't going to be helpful. Thanks for your concern for these people. Please reach out to...

The authors suggest that Long Covid may be related to the virus remaining in tissues other than blood. They are fans of Ivermectin as a treatment of Covid-19. 856 patients discharged from a Buenos Aires hospital. 57 of these were still under the supervision of various specialists (4 of the...

Interesting to see the recognition of one type of Long Covid equalling post viral fatigue syndrome/ CFS from these Argentinian authors:

Some posts more related to the epidemiology of Long Covid than whether Long Covid can be ME/CFS have been moved here: Long Covid epidemiology (prevalence, incidence, recovery rates)

Ah, I see what you mean. I have experienced that too, with things like complicated tax returns involving multiple difficult steps. I wouldn't call it a lack of will power though. I think I've heard it described as there being 'high friction' for those tasks - they are hard to start and hard...

And, as shown on the waterfall chart that Rvallee posted, they started with 1400, most of which they excluded due to them having psychological issues. We've discussed this Polish sample before. You have to wonder about the screening tools used that would tip so many people into a...

I haven't read the study yet. As well as all the already discussed problems, these researchers have used the Chalder Fatigue Questionnaire. I don't understand how that can still be happening when there are some experienced ME/CFS researchers listed as authors. I note New Zealand's Lynette...

When I read it, it was very clear to me that he was supporting psychosomatic causes. I'll see if I can find the book. From memory, he gave examples of people having migraines as a way of giving themselves permission to rest, or avoid things they didn't want to do.

Here's one that is linked in an NIH article: Effect of Mindfulness-Based Stress Reduction vs Cognitive Behavioral Therapy or Usual Care on Back Pain and Functional Limitations in Adults With Chronic Low Back Pain: A Randomized Clinical Trial. Researchers found that mindfulness-based stress...

Posts about the possibility of Covid-19 vaccines improving or curing Long Covid or ME/CFS have been moved here to keep the discussion on one place: Covid-19 vaccination experiences

I note again that this was not a condition exclusively of girls - there's this paper that reported on 46 consecutive cases of Resignation syndrome: https://link.springer.com/article/10.1007/s00787-019-01427-0 (note that that paper was co-written by a doctor who became well-known as a result...

I think medicine is fine with painkillers for conditions where they have some idea of how to fix the underlying problem. Or even for terminal conditions, so long as the person dies fairly promptly, before compassion fatigue sets in. It's just the people with the effrontery to have a condition...

Posts relating to forced removal of children have been moved to Children with ME, schools and the problems of FII diagnosis

Donated, and very happy to. There's lots of work left to do. Thanks for the explanation around university funding Dave. Is there any prospect of you getting tenure? It's a shame you aren't teaching - you have a lot of interesting material to use to get across some important ideas to students.

@Hilda Bastian, your track record strongly suggests that you care about consumers of health systems. People with ME/CFS tend to be pretty understanding when people can't deliver things on time. We have all had to miss deadlines, and let people down. We know that can be unavoidable due to...

It immediately followed an illness (three of us in my family had the illness and then developed ME/CFS). I think it was a viral illness - 'gastric flu' although no specific pathogen was confirmed.

There were boys as well as girls supposedly affected by the Swedish 'Sleeping Beauty Syndrome'. As discussed on our thread on this subject https://www.s4me.info/threads/the-new-yorker-the-trauma-of-facing-deportation.3603/, this particular psychosomatic syndrome always looked unlikely to be...

Lots of great lines and observations. It's so perverse, isn't it - the people who most need really nourishing delicious food get 'Lemon gelatine' and varieties of brown slop with fanciful names. The food my daughter got while in hospital made me think the catering was a deliberate ploy to...

I took valtrex (valacyclovir) for 18 months due to recurrent cold sores that started after I got ME/CFS. For most of that 18 months, each time I ran out of valtrex, the cold sores would return. Eventually though, I could stop taking the valtrex and just get an occasional cold sore. I tracked...

Posts about anti-viral treatments have been moved or copied here: Antivirals as ME/CFS or Long Covid treatments (e.g. valacyclovir, valgancyclovir)