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Ah, in that case I have been confused, and there should be an interim statement specifically on GET.

I am a lot more comfortable about NICE re keeping their old flawed guideline live than I am for Cochrane keeping its flawed reviews up. From memory, the old NICE guideline covers a lot more than GET and CBT, and some of it might be useful. And NICE has made a statement saying that GET should...

:thumbup:

You are right of course, Wonko. I've added a comma, as in 'Cochrane must remove it, now' and it should be read with an imperative tone. Of course there are lot of things that I think Cochrane must do, given their stated reasons for existing, (including removing officeholders with...

From memory, there were only two or three meetings of the committee scheduled to consider the submissions from the public and finalise the guideline. It was never a realistic time frame and our S4ME submission noted that we would prefer the publication of the guideline to be delayed a bit if it...

I thought this article was interesting because it talks about a colony of rhesus monkeys that don't have the rhesus monkey equivalent of human EBV. So, then scientists can infect monkeys and study what happens. Potentially then, a study could be done to see if there are post-EBV post vital...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3713193/ Dr. Fred Wang, Harvard Medical School, Brigham & Women’s Hospital, Medicine and Microbiology & Immunobiology Abstract Epstein-Barr virus (EBV) is a human herpesvirus that infects nearly all humans by adulthood and is associated with a...

It's a picture of a model of lungs, with bits carved away to see the inside.

It is possible that ME/CFS is specific to humans, although, if there really are subsets of ME/CFS, then that makes it even less likely that all the versions of ME/CFS are unique to humans. If, as seems possible, pathogens are altering the host's immune system in order to make the environment...

The more I think about this, the more I am sure that ME/CFS must affect animals. It seems unlikely that a whole lot of diseases, as diverse as bacteria and virus can seem to trigger ME/CFS in humans without there being similar post-infection things going on in at least some animals. There are a...

That's an interesting item for a few reasons. Dr Nathalie McDermott mentions that she caught Covid-19 in March and then recovered. And then caught it again in May and went on to develop Long Covid. I wonder if that idea of the subsequent strike of different strain of an illness causing the...

Michiel, if you get to covering migraines, Oliver Sacks' 'Migraine' is worth a read. I had thought Oliver Sacks was a knowledgeable, kind and interesting writer, but I came across a copy of the Migraine book at a school fair. While he may be all those positive things, he has also been a...

Someone I know who was able to attend said that this was a success. 'Heartening to see the good response from the room'. That's all the details I have so far. Thanks Carolyn!

From this thread: Possibility of ME or PVFS after COVID-19, Long Covid German politician Karl Lauterbach has been tweeting about opening up society and mentions ME/CFS as one of the reasons for being careful. According to wikipedia he's a professor of health economics and epidemiology and is a...

From the BPS attempts at psychologizing #LongCovid thread, news of an article from Jeremy Devine of Ontario (perhaps not coincidentally, where Edward Shorter also lives - he has said very similar things about ME/CFS)

Wonderful and really important news - thank you to all who have made this happen ZonMw is The Netherlands Organisation for Health Research and Development From Michiel's twitter thread above (which is worth clicking through to): 2) The 2018 report by the Dutch Health Council, the Ministry of...

This was my reaction to the abstract too. I did start reading the paper, and that wasn't quite the question they answered though, at least for part of the study. It seems that they found that women's pain was perceived to be (slightly) lower than mens in video clips with the same amount of...

I would feel a lot more accepting of the delay in the production of a new 'exercise for ME/CFS review' if Cochrane didn't still have a badly flawed exercise review up on its site, right at the very time when the global population of people with ME/CFS appears to be increasing massively, and...

your daily reminder to vote :) https://awardsaustralia.app.do/vicyaa21 Click here and scroll down to Daniel's picture. Click on it to select and then scroll down to send.

I still don't have a very good idea of how many people with ME/CFS you have worked with Joshua, or how solid their diagnoses are. Go up to the top of this thread, on the left, and click on 'cortisol'. That will give you a list of some of the papers that have looked at cortisol levels...