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To play devil's advocate: What if a culture did result in men on average down-playing how much pain they have when they talk about it - or in women being more likely to show that they had pain in their facial expressions? It seems conceivable to me that this could be possible in some...

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Thanks Barry, fixed

There's criticism of the 'Your Covid Recovery' NHS website, but the quote used suggests that the opposition to GET is being framed in the context of possibly having heart or lung damage, rather than GET not helping even in the absence of such damage. . I had to laugh at this - do the authors...

Re Carolyn Chew-Graham, one of the authors of this study: http://www.virology.ws/2019/01/28/trial-by-error-my-letter-to-professor-chew-graham-about-metric/

another reminder to vote

That 11 micrograms/dL is surprisingly high. Parts of Dunedin have recently been reported as having unsafe lead levels in water. From another article on the study: A good example of how values of toxins that trigger concern and various actions can vary quite a bit over time and from place to...

I found it, here, re Dr Gilete Jen Brea: A new diagnosis to add to the list I have craniocervical and atlantoaxial instability https://drgilete.com/neurosurgeon-spine-surgeon/ From his website:

Yes, we saw on an earlier thread that at least one of the doctors associated with CCI operations isn't necessarily doing the operations himself. There seemed to be a contracting out of the surgery. With that kind of a business model, there's a lot less of a constraint on how many people can be...

There have been a range of approaches to cortisol measurement. Long term assessments (using hair) and daily assessments haven't shown differences. Yes, there is some evidence for morning peaks being delayed, but this is not at all surprising given the fact that many people with ME/CFS get up...

So you are saying that people who develop ME/CFS initially have high cortisol, but then, due to deficiencies in the substances needed to make it, develop low cortisol, and then, after a while, it could be anything, but it isn't normal? Do you have any evidence for this, or does it just seem...

There are numerous studies of cortisol in ME/CFS, as many researchers seem to think 'ah, ME/CFS, caused by stress, therefore there must be a cortisol marker'. Looking at the various studies, there is no evidence that people with ME/CFS, as a group, have abnormal cortisol levels. Typically...

We have a thread on that paper: Characterization of Cortisol Dysregulation in Fibromyalgia and Chronic Fatigue Syndromes: A State-Space Approach, 2020, Pednekar et al It's a pretty bad paper. It's not evidence for elevated cortisol levels in CFS.

Joshua, you seem to be suggesting people with HASD CFS/ME have chronically elevated cortisol levels. The reference you give doesn't relate to the elevated cortisol part of the sentence. What makes you think people with ME/CFS have elevated cortisol? Looking at cortisol in ME/CFS studies...

@Simone, do you know anything about this study, or Campo and Taylor? How did they get hold of 21 CFS patients?

It's an open label study. The authors don't tell us how 'no more CFS' or 'improve in fatigue and general symptoms' was measured. So, unfortunately, this study doesn't really tell us anything. The reported complete cure of CFS in 5 out of 21 patients is interesting. But there are so many...

https://onlinelibrary.wiley.com/doi/full/10.1111/imj.11_14849 (It's free access but I think it's just a poster) Jorge do Campo 1 and Vivienne Taylor 2 1 Noosa Hospital, Queensland, Australia 2 Ibuki Medical Centre, Noosa, Queensland, Australia Abstract Background: Epstein Barr Virus (EBV) is a...

There were two patients. Sure, that's a small number, but we've also seen the published paper that appeared overly confident about the utility of Ablify and that suggested that patients were being lost to followup. Yes, the utility of a drug and the ethics of doctors promoting it are not always...

That's not really true. If the trial has a reasonable size, then it's likely that any benefit in a substantial subset will bring the average response above that of the placebo treatment. If the changes are charted, it should be possible to actually see that a treated subset benefitted. I'm...

Terrific tweet from Simon DeCary, Canadian Long Covid researcher dismissing suggestions that ME/CFS activists have put researchers off investigating the condition: Link posted here:News from Scandinavia