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It looks very good - there's a lot in there. Key aims include getting good guidelines and ongoing efforts on research (including the biobank) and education. Some initial responses: I note that there is an aim to serve every Australian. I'd like to see some research into the prevalence of...

This thread Severity of Acute Infectious Mononucleosis Correlates with Cross-Reactive Influenza CD8 T-Cell Receptor Repertoires Nuray Aslan et al 2017 discuss Selin and Gil's work. It's also mentioned here: The possibility of autoimmunity or auto-reactivity in ME/CFS (edited to take into...

Don't forget to vote

I found some data on the categories of things people are seen for in primary care in a region in New Zealand, I think I posted about it somewhere. At least in New Zealand, this idea that 50% of consultations are about symptoms where a biological cause is not known is rubbish. There are...

Some posts about David Tuller's latest blog have been moved to BPS attempts at psychologizing #LongCovid

There is a high level of skepticism on this forum about people who claim to have discovered a treatment protocol. This is the natural result of having seen many such people (some with very strong scientific backgrounds), with none of the protocols bearing fruit. It's also a natural result of...

Oh dratalanta, I think the infiltratration of the BPS plumbers into society goes much further than clogged lavatories... :cautious: More on this here:

Oh, for goodness sakes. You can drive a bulldozer through the holes in this. In addition to all the good points before, a couple more of the many that could be made: Me-forum is reported as having 50 registered users per 1000 cases, and the 2,400 total users managed to make about 500 messages...

Oh yes, you are right, somehow I missed those pairs of r2 values. ( I should have been asleep at the time.)

Yes, regardless of the statistics, it's an approach that should be used a lot more when choosing which research proposals to allocate funds to. I recall one proposal to trial a mixed supplement for ME/CFS. Some of the evaluators thought that it would be a nice project as it might produce a...

An iceberg is altogether too pure for this metaphor, I'm thinking 'fat berg' might be more appropriate.

Yes, but if they are saying 1. there was a significant but weak association between the activity diary and the activity monitor for CFS patients (and presumably no significant association between the activity diary and the activity monitor for healthy controls), and 2. there was a moderately...

I was able to vote (from NZ). I'm sure koalas qualify.

Terrific rebuttal by the Norwegian ME Association in the Khrono article:

...discrepancies between objective and subjective measurement of the physical activity level in female patients with [CFS], 2021, Vergauwen et al A significant paper from Belgian researchers - finding that (subjective) activity diaries don't adequately record activity, as compared to (objective)...

Yep, and not just PACE. (edit to add) If (daily?) activity diaries aren't reliable records of how much activity was done, how much worse must questionnaires asking about levels of activity after a month of an intervention be? What are they actually reporting here? I can't make sense of it -...

Great. The thread is pinned to the top of the General ME/CFS News subforum so that it's easy to find for daily voting.

This recent thread announces some ME/CFS research into HERVs ME Research UK announce funding for "The effect of activated HERVs and the associated immune response in severe ME/CFS"

So, it looks like infection with a virus e.g. EBV can create an environment that activates human endogenous retroviruses to produce proteins. I thought this was good when read alongside Activation of endogenous retroviruses during brain development causes an inflammatory response, 2021...

https://www.nature.com/articles Open access Jungang Chen, Maryam Foroozesh & Zhiqiang Qin Abstract Human endogenous retroviruses (HERVs), viral-associated sequences, are normal components of the human genome and account for 8–9% of our genome. These original provirus sequences can be...