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It's hard to tell from an abstract and an article, but the side effects don't sound too terrible for most. Possibly they weren't even noticeable for many? Here someone 'not involved in the trial' says the side effects were 'really marginal'. And the person written about in the article claims...

"Action for M.E. is pleased to announce its trans-Atlantic partnership with US charity Solve M.E., focused on enhancing the wellbeing of people with M.E., raising awareness, delivering policy changes, and increasing research on its causes and possible treatments." The partnership consists of...

The COVID-19 Sequelae: A Cross-Sectional Evaluation of Post-recovery Symptoms and the Need for Rehabilitation of COVID-19 Survivors, 2021, Iqbal et al Another Pakistan study of post-Covid symptoms, this one from Karachi. There's acknowledgement that some of the post-Covid clinical picture is...

I think it's interesting to see how the emergence of Long Covid is acknowledged in different cultures. So the survey was done approximately 1 to 3 months after 'recovery'. Participants were obtained by use of the details of people PCR tested at the Dow Diagnostic Laboratory. The social class...

Wonderful news, well-deserved. One of just three finalists - that's good odds. I'm hoping Daniel wins, not least because that would be great publicity for ME/CFS.

The trial does look good from the abstract. Double-blind; an intention-to-treat analysis; a substantial loss of weight, way more than that achieved by the control; recording of harm. It looks like it's a trial funded by the manufacturer, so you'd want to see some independent validation. The...

Terrific set of tweets by Hannah Davis.

The article in the Skeptical Inquirer leans towards the idea of mass hysteria. It's hard to believe that the 'publicly acceptable explanation' that mainstream'political forces' might favour is that foreign governments are microwaving diplomats in hotels. I can imagine that if you have...

Interesting to see this Nikkan Gendai Healthcare article which seems to have no problem in labelling the post-Covid syndrome as ME/CFS. It mentions diagnostic symptoms and treatments. Linked on the Long Covid thread: Possibility of ME or PVFS after COVID-19, Long Covid

https://www.genome.gov/genetics-glossary/Copy-Number-Variation Copy number variation is a type of structural variation where you have a stretch of DNA, which is duplicated in some people, and sometimes even triplicated or quadruplicated. And so when you look at that chromosomal region, you will...

Posts about blood donation have been moved here: Organ donation and blood donation

I recently got an air purifier. I had seen the quantity of dust in the air in my lounge when the evening sun streamed in the windows, and it seemed a bit horrifying that we were breathing all of that. Also, I hoped it would reduce the amount of dusting needed. I chose a Winix Zero + Pro...

Yes, there is. For the benefit of those who aren't aware of the idiom, 'lift a finger' is used in phrases such as 'you never lift a finger to help me/yourself/someone'. It's used negatively to suggest that someone couldn't be bothered to do even the smallest possible action. It surely isn't...

It's worth a read. The inadequacy and inappropriateness of the response to a huge problem is remarkable. A lot of people will recover in spite of this app - so it's possibly going to create an enormous amount of false belief that the app works. There must be a proper trial done of it. That...

If I had a robot that could understand that abstract, I reckon it would also have better things to do with its time.

I'm struggling to muster up the energy and enthusiasm required to read this paper. From the abstract, it assumes a great deal that is questionable is proven.

I do think AfME has changed a lot, although I'm also sure that some on their Board and in their staff support BPS ideas to a greater or lesser degree. Even now, their messages and materials aren't always entirely helpful. I don't think support for DecodeME, even the active, constructive...

I hope that they can get the funding for the proposed double blind study - it would be good to have that treatment possibility addressed properly. Ron Davis also suggests in that video that the earlier work on red blood cell deformability may be correct. He says that the later work done which...

We have a thread on B12 as a treatment here: IM hydroxocobalamin (B12) treatment

Thanks for those great insights, Effi, thanks for making the effort. I found that Sorenson, Jason 2014 study yesterday with its finding of decreased BDNF, which, as you say, is at odds with the finding of elevated BDNF by this group. I found some papers suggesting BDNF is lowered in people...