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That is exactly how this is going to happen. This crap will be abused to the max against us. 'Don't you want to get better? If you are not even prepared to try then sorry but no support for you, lazy peasant scum.' That kind of cruel blackmail shit. This.

I think it is very clear now (and frankly was from fairly early on) that a very large chunk of LC patients, maybe the majority, have ME/CFS. Not something resembling or related it, but actually it. I see no fundamental difference yet in the evidence. To the contrary. I do see the medical...

On their misperceptions of their intentions. Talk about a buggy software. Therapists, heal thyselves!

Yeah, because the psychosomatic club just hasn't had a fair go at the funding and power, at trying to explain and fix it. Yeah, that's the explanation. His statement would have fitted right into the arguments they were making back then. Just read Wessley's stuff from that time. Nothing has...

Exactly. The blame does not lie entirely with the authors. The whole system is rotten. Which is why it is proving so difficult to get it to change. They are all up to their eyeballs in the swamp they have created, with honourable exceptions. They get rewarded for it. Spot on. I think the...

Power, glory, income, sense of purpose, saviour complex, etc. You know, the usual bag of motivations. I don't think it is any great mystery. The much more important and disturbing question is how have they been able to so easily get away with what is in fact a fairly straightforward case of...

Well said. It is so short, obvious, and unremarkable a list, isn't it. The contrast couldn't be starker.

Iatrogenesis Oh the irony.

Patients had wised up to traditional psychobabble, so they needed some new marketing terms, and went for 'neuro' based stuff.

Good point. Mostly early on, but I have had a few times when I improved hugely more or less overnight (though nowhere near full recovery), for no obvious reason. It never lasted, but the point is that I was functioning at a much higher level. This is one of the main reasons why I have no...

And blaming the patient when it doesn't work, and worse. Wildly misused, just like pacing. Exactly. It is just a highly intrusive invasive power grab over our lives, with zero justification, and highly adverse consequences for us. Whatever legitimate practical advice could be currently offered...

A long COVID diagnosis at timepoint 1 was classified by biopsychosocial variables including stress, social support, and sex (women more likely).... These findings highlight the complex biopsychosocial factors that predict having long COVID with brain fog, and the need for interventions to...

Yep. The whole lack of energy concept, while superficially appealing, is seriously misleading. I really wish we could ditch it completely. It is not a lack of energy (certainly in the technical sense), it is the inability to put it into effect without a very high cost, both at the time of...

Yep, that is basically what is happening. All superficial short-term feel-good and serious pressure to not report any bad stuff. Then the pros walk away before the reality hits and they have to confront it.

You would think so, in theory. But apparently not in practice.

Yes, none of this is for our benefit.

Does supported self-management seem the best way forward at this time? For example, if there are other treatments being explored, we may need to consider if they are complimentary and can run in parallel, or perhaps one approach may need to be delayed to a different time so that they run in...

If possible and safe for you to do so, then I think it is quite important to get this kind of stuff on the public record, partly to be able to confront those who wrote and signed it and demand an explanation, and partly to expose them to the rest of the world. It might help enlighten and...

The behavioral medicine approach is presented as harmless, There is no such thing as a therapy without risk of harm, one that can only deliver benefit. If a treatment has the power to do good then it also has the power to do harm. Anybody who claims there is should be immediately struck of the...

We can counter with the much more fundamental human right for patients to have any therapy, rehabilitative or otherwise, to be firmly based in robust evidence of both efficacy and safety. Besides, all non-palliative therapies are in some sense rehabilitative, in that they aim to improve...